Philip Moons

K. Raymaekers, Philip Moons, S. Prikken, E. Goossens, R. Hilbrands, K. Luyckx
Journal of Behavioral Medicine - 2023

Digital Healthcare Consumption - Lessons about online

information.

Faye Forsyth, Philip Moons
European journal of cardiovascular nursing - 2023

Pandemic-induced stress leading to nurse attrition: The fourth COVID-19 wave in full

action.

Philip Moons
European journal of cardiovascular nursing - 2023

Illness identity and well-being in congenital heart disease: Directionality of effects and developmental

trajectories.

Sara Campens, Elise Van Laere, Janne Vanderhaegen, Liesbet Van Bulck, Philip Moons, Koen Luyckx
Health psychology : official journal of the Division of Health Psychology, American Psychological Association - 2023

Patient-reported outcomes in the aging population of adults with congenital heart disease: results from

APPROACH-IS.

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Adrienne H Kovacs
European journal of cardiovascular nursing - 2023

Letters to the editor: Questionable publishing practices in the ChatGPT

era.

Philip Moons, Alexander Van De Bruaene, Liesbet Van Bulck
European journal of cardiovascular nursing - 2023

Developing the "Healthcare CEO App" for patients with type 1 diabetes transitioning from adolescence to young adulthood: A mixed-methods

Yueh-Tao Chiang, Chi-Wen Chang, Hsing-Yi Yu, Pei-Kwei Tsay, Fu-Sung Lo, Chi-Wen Chen, Wen-Yen Lin, Chien-Lung Hsu, Chi An, Philip Moons
Nursing open - 2023

The world of cardiovascular nursing research: Cross-country evolutions in articles published in the European Journal of Cardiovascular

Nursing.

Philip Moons
European journal of cardiovascular nursing - 2023

Outcome of Down patients with repaired versus unrepaired atrioventricular septal

defect

M Daene, L Depauw, Pieter De Meester, Els Troost, Philip Moons, Marc Gewillig, Filip Rega, Alexander Van De Bruaene, Werner Budts
International Journal of Cardiology Congenital Heart Disease - 2023

Open Access publishing: benefits and

challenges.

Anna Strömberg, Tone M Norekvål, Philip Moons, Sandra Lauck
European journal of cardiovascular nursing - 2023

For better or for worse: When chatbots influence human emotions and

behaviours.

Philip Moons
European journal of cardiovascular nursing - 2023

Decreased cardiac reserve in asymptomatic patients after arterial switch operation for transposition of the great

arteries.

Béatrice Santens, Alexander Van De Bruaene, Pieter De Meester, Guido Claessen, Philip Moons, Piet Claus, Kaatje Goetschalckx, Jan Bogaert, Werner Budts
International journal of cardiology - 2023

What if your patient switches from Dr. Google to Dr. ChatGPT? A vignette-based survey of the trustworthiness, value and danger of ChatGPT-generated responses to health

questions.

Liesbet Van Bulck, Philip Moons
European journal of cardiovascular nursing - 2023

Short-term Prognostic Value of Heart Failure Diagnosis in a Contemporary Cohort of Patients With Adult Congenital Heart

Lenn Maessen, Pieter De Meester, Els Troost, Marc Gewillig, Filip Rega, Philip Moons, Werner Budts, Alexander Van De Bruaene
The Canadian journal of cardiology - 2023

ChatGPT: Can artificial intelligence language models be of value for cardiovascular nurses and allied health

professionals.

Philip Moons, Liesbet Van Bulck
European journal of cardiovascular nursing - 2023

Aging and age-related issues in congenital heart disease: a new niche in treatment, care and

research.

Bo Daelman, Philip Moons
European journal of cardiovascular nursing - 2023

Changing epidemiology of congenital heart disease: effect on outcomes and quality of care in

adults.

Aihua Liu, Gerhard-Paul Diller, Philip Moons, Curt J Daniels, Kathy J Jenkins, Ariane Marelli
Nature reviews. Cardiology - 2023

Biological Age in Congenital Heart Disease-Exploring the Ticking

Clock.

Tijs K Tournoy, Philip Moons, Bo Daelman, Julie De Backer
Journal of cardiovascular development and disease - 2023

Development of quality indicators of transfer and transition in adolescents and young adults with congenital heart

Corina Thomet, Philip Moons, Markus Schwerzmann, Fabienne Schwitz
BMC health services research - 2023

Patiëntgerapporteerde uitkomsten in de cardiologie: een consensusdocument van de Europese Vereniging voor Cardiologie

(ESC)

Philip Moons
Tijdschrift voor Cardiologie/Journal de Cardiologie - 2023

Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1

Mikaela Vallmark, Anna Lena Brorsson, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons, Markus Saarijärvi, Mariela Acuña Mora
Journal of patient-reported outcomes - 2023

Left atrial strain in patients after arterial switch operation for transposition of the great

arteries

Margot Erard, Béatrice Santens, Alexander Van De Bruaene, Pieter De Meester, Els Troost, Philip Moons, Jens Uwe Voigt, Benedicte Eyskens, Werner Budts
Acta Cardiologica - 2023

Mental health in adult congenital heart

Philip Moons, Liesbet Van Bulck, Bo Daelman, Koen Luyckx
International Journal of Cardiology Congenital Heart Disease - 2023

Exercise in patients with repaired tetralogy of Fallot: a systematic review and

meta-analysis

A. Schuermans, M. Boerma, G. A. Sansoni, J. van den Eynde, J. J. M. Takkenberg, W. A. Helbing, T. Geva, Philip Moons, A. van de Bruaene, W. Budts
Heart - 2023

Het leven met een aangeboren hartaandoening: van adolescentie, over volwassenheid tot veroudering.

EuroACHD-congresverslag

Philip Moons
Tijdschrift voor Cardiologie/Journal de Cardiologie - 2023

Reply to Damani et al.-Bridging the Gap: Considering Gender Disparity, Lifestyle, and Other Factors in Predicting the Outcomes of

ACHD.

Alexander Van De Bruaene, Werner Budts, Philip Moons
The Canadian journal of cardiology - 2023

Using ChatGPT and Google Bard to improve the readability of written patient information: A

proof-of-concept.

Philip Moons, Liesbet Van Bulck
European journal of cardiovascular nursing - 2023

modeling.

Francesco Zaghini, Valentina Biagioli, Jacopo Fiorini, Michela Piredda, Philip Moons, Alessandro Sili
Applied nursing research : ANR - 2023

Concerns about the use of artificial intelligence in composing Letters to the

Editor.

Philip Moons, Alexander Van De Bruaene
The Canadian journal of cardiology - 2023

Empowering the Future: Transitioning to Adulthood With Congenital Heart

Philip Moons
CJC pediatric and congenital heart disease - 2023

Unravelling anxiety in adults with congenital heart disease: untrodden

paths

Liesbet Van Bulck, Philip Moons
JACC Advances - 2023

Patiëntgerapporteerde uitkomsten in de cardiologie: een consensusdocument van de Europese Vereniging voor Cardiologie

(ESC).

Philip Moons
Tijdschrift voor Cardiologie/Journal de Cardiologie - 2023

Personal and illness identity in youth with type 1 diabetes: Developmental trajectories and

associations

Janne Vanderhaegen, Koen Raymaekers, Sofie Prikken, Laurence Claes, Elise Van Laere, Sara Campens, Philip Moons, Koen Luyckx
Book of abstracs European Health Psychology Society conference, 4-8 Sept 2023, Bremen, Germany: 609 - 2023

Illness identity and well-being in congenital heart disease: Directionality of effects and developmental

trajectories.

Sara Campens, Elise Van Laere, Janne Vanderhaegen, Liesbet Van Bulck, Philip Moons, Koen Luyckx
Book of abstracs European Health Psychology Society conference, 4-8 Sept 2023, Bremen, Germany: 588 - 2023

Comparing youth with and without type 1 diabetes on perceived parenting and peer

functioning

Koen Raymaekers, Philip Moons, Sofie Prikken, Eva Goossens, Robert Hillbrands, Koen Luyckx
Book of abstracs European Health Psychology Society conference, 4-8 Sept 2023, Bremen, Germany: 693 - 2023

Experiences of informal caregivers taking care of heart surgery patients after discharge from hospital: a qualitative

Irene Lie, Philip Moons, Theis Tonnessen, S Halvorsen, M Blakoe, CH Moller, ML Kaljusto, ML Parry, AK Bjornnes, Ida Hojskov
European Heart Journal - 2023

Frailty phenotype and cognitive functioning in middle-aged and older adults with congenital heart disease: Results of an international multicentric

Bo Daelman, Liesbet Van Bulck, Koen Luyckx, Adrienne H Kovacs, Philip Moons, Eva Goossens
European Heart Journal - 2023

Informal caregivers must open the door to information during heart surgery patients hospitalization: A qualitative

Ida Hojskov, AK Bjornnes, Theis Tonnessen, S Halvorsen, M Blakoe, CH Moller, ML Kaljusto, M Parry, Philip Moons, Irene Lie
European Journal of Cardiovascular Nursing - 2023

Decreased cardiac reserve in asymptomatic patients after ASO for transposition of the great

arteries

Béatrice Santens, Alexander Van De Bruaene, Pieter De Meester, Guido Claessen, Philip Moons, Piet Claus, Kaatje Goetschalckx, Jan Bogaert, Werner Budts
Cardiology in the Young - 2023

Outcome of Down patients with repaired versus unrepaired atrioventricular septal

defects.

Daene M, De Pauw L, De Meester Pieter, Troost Els, Philip Moons, Gewillig Marc, Rega Filip, Van De Bruaene Alexander, Budts Werner
Cardiology in the Young - 2023

Having a chat with Bard and Ernie: The rapidly changing landscape of large language

models

Philip Moons
Pfizer Medical Liaison Officers. Brussel, Belgium - 2023

Neurocognitive and psychological outcomes in adults with congenital heart

Philip Moons
VIC State of the Heart. Malmö, Sweden - 2023

Contraception and congenital heart

Philip Moons
52th Congress of the Italian Society of Pediatric Cardiology and Congenital Heart Disease. Florence, Italy - 2023

The STEPSTONES research programme: effectiveness and

implementation.

Philip Moons
The 4th European Symposium on Transition. Rotterdam, the Netherlands - 2023

The use of ChatGPT in healthcare and implications for patient

safety.

Philip Moons
School of Nursing, University of Iowa, USA - 2023

ChatGPT: How can nursing and health science education use

it?

Philip Moons
ESC congress 2023. Amsterdam, the Netherlands - 2023

Aging with congenital heart disease: Are we

prepared?

Philip Moons
ACNAP2023. Edinburgh, United Kingdom - 2023

How to make a good graphical

abstract

Philip Moons
ACNAP2023 Pre-conference workshop. Edinburgh, United Kingdom - 2023

International evidence on transitional care in congenital heart

Philip Moons
Transition seminar and planning day. Birmingham, United Kingdom - 2023

Advance care planning in

ACHD

Philip Moons
3rd Asia Pacific Adult Congenital Heart Disease Symposium (APSACHD). Taipei, Taiwan - 2023

Elderly ACHD patients, a growing

population

Philip Moons
3rd Asia Pacific Adult Congenital Heart Disease Symposium (APSACHD). Taipei, Taiwan - 2023

Professional development and leadership in nursing: What we can learn from

adversities.

Philip Moons
Symposium of the Ukranian Nurses Organization. Kyiv, Ukraine - 2023

Wat zijn de effecten van verpleegkundig specialisten op patiëntenuitkomsten, aantrekkelijkheid van het beroep en de

zorgorganisatie?

Philip Moons
Residentiële cursus AccentVV. Brugge, Belgium - 2023

Aging gracefully with a CHD, is it

possible?

Philip Moons
EuroACHD 2023. Paris, France - 2023

Patient Perspectives on QOL from across the

globe

Philip Moons
Congress: Growing up with congenital heart disease. Kochi, India - 2023

Speak loudly, speak visually. Scientific data visualization, what journals want to

see.

Philip Moons
Alice Lee School of Nursing Studies. Singapore - 2023

How to conduct world-class research: International collaborative research and big data

Philip Moons
University of Tokyo, Japan - 2023

The medical system, focusing on transitional

Philip Moons
The 24th Annual Meeting of Japanese Society for Adult Congenital Heart Disease. Matsuyama, Japan - 2023

Quality of life in adults with congenital heart

Placing patient-reported outcomes at the centre of cardiovascular clinical practice: implications for quality of care and management A statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the Association for Acute CardioVascular Care (ACVC), European Association of Percutaneous Cardiovascular Interventions (EAPCI), European Association of Preventive Cardiology (EAPC), Heart Failure Association (HFA), European Heart Rhythm Association (EHRA), European Association of Cardiovascular Imaging (EACVI), ESC Regulatory Affairs Committee, ESC Advocacy Committee, ESC Digital Health Committee, ESC Education Committee, and the ESC Patient

Philip Moons
The 24th Annual Meeting of Japanese Society for Adult Congenital Heart Disease. Matsuyama, Japan - 2023

Identity Formation and General and Cancer-specific Functioning in Adolescent and Emerging Adult Survivors of Childhood Cancer: A Longitudinal Study into Directionality of

Effects.

Janne Vanderhaegen, Sofie Prikken, Elise Van Laere, Jurgen Lemiere, Laurence Claes, Philip Moons, Anne Uyttebroeck, Sandra Jacobs, Koen Luyckx
Annals of behavioral medicine : a publication of the Society of Behavioral Medicine - 2023

Forum

Philip Moons, T. M. Norekval, E. Arbelo, B. Borregaard, B. Casadei, B. Cosyns, M. R. Cowie, D. Fitzsimons, A. G. Fraser, T. Jaarsma, P. Kirchhof, J. Mauri, R. Mindham, J. Sanders, F. Schiele, A. Torbica, A. D. Zwisler
European Heart Journal - 2023

Cardiovascular nurses and organizational well-being: a systematic

F. Zaghini, J. Fiorini, Philip Moons, A. Sili
European Journal of Cardiovascular Nursing - 2023

Response to the Letter to the Editor on: Dr. ChatGPT in Cardiovascular Nursing: A Deeper Dive into Trustworthiness, Value, and Potential

Risks.

Liesbet Van Bulck, Philip Moons
European journal of cardiovascular nursing - 2023

The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of

effect?

Mariela Acuña Mora, Carina Sparud Lundin, Eva Fernlund, Shalan Fadl, Kazamia Kalliopi, Annika Rydberg, Åsa Burström, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
PloS one - 2022

Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart

Liesbet Van Bulck, Adrienne H Kovacs, Eva Goossens, Koen Luyckx, Ali Zaidi, Jou-Kou Wang, Dejuma Yadeta, Jonathan Windram, Alexander Van De Bruaene, Corina Thomet, Jean-Benoît Thambo, Marshall Taunton, Navaneetha Sasikumar, Camilla Sandberg, Arwa Saidi, Tobias Rutz, Lucia Ortiz, Julius Chacha Mwita, Ju Ryoung Moon, Samuel Menahem, Eva Mattsson, Zacharias Mandalenakis, Vaikom S Mahadevan, Birgitte Lykkeberg, Mohamed Leye, Ming Chern Leong, Magalie Ladouceur, Laila Akbar Ladak, Yuli Kim, Paul Khairy, Anna Kaneva, Bengt Johansson, Jamie L Jackson, George Giannakoulas, Harald Gabriel, Susan M Fernandes, Junko Enomoto, Fatma Demir, Michèle de Hosson, Andrew Constantine, Louise Coats, Christina Christersson, Ari Cedars, Maryanne Caruana, Edward Callus, Sarah Brainard, Judith Bouchardy, Anna Boer, Fernando Baraona Reyes, Maria Emília Areias, John Jairo Araujo, Brith Andresen, Pascal Amedro, Jean-Claude Ambassa, Fernando Amaral, Luis Alday, Philip Moons
International journal of cardiology - 2022

Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15

Countries

C. W. Lu, J. K. Wang, H. L. Yang, A. H. Kovacs, K. Luyckx, F. J. Ruperti-Repilado, A. Van de Bruaene, J. Enomoto, M. A. Sluman, J. L. Jackson, P. Khairy, S. C. Cook, S. Chidambarathanu, L. Alday, E. Oechslin, K. Eriksen, Mikael Dellborg, M. Berghammer, B. Johansson, A. S. Mackie, S. Menahem, M. Caruana, G. Veldtman, A. Soufi, S. M. Fernandes, K. White, E. Callus, S. Kutty, S. Apers, Philip Moons
Journal of the American Heart Association - 2022

Absence from work or school in young adults with congenital heart disease: is illness identity associated with

absenteeism?

Inwon Na, Liesbet Van Bulck, Jessica Rassart, Eva Goossens, Koen Luyckx, Alexander Van De Bruaene, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2022

Last year of life of adults with congenital heart diseases: causes of death and patterns of

Liesbet Van Bulck, Eva Goossens, Lucas Morin, Koen Luyckx, Fouke Ombelet, Ruben Willems, Werner Budts, Katya De Groote, Julie De Backer, Lieven Annemans, Stéphane Moniotte, Michèle de Hosson, Arianne Marelli, Philip Moons
European heart journal - 2022

Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and

Risks?

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of Cardiovascular Nursing - 2022

Patients, family members, and health professionals making decisions together about starting blood thinning treatment to prevent stroke in patients with an irregular heart

rhythm.

Catriona Jennings, Philip Moons, Jeroen Hendriks
European journal of cardiovascular nursing - 2022

Applications of artificial intelligence for nursing: has a new era

arrived?

Liesbet Van Bulck, Raphaël Couturier, Philip Moons
European journal of cardiovascular nursing - 2022

Hypertension in children and

adolescents.

Giovanni de Simone, Costantino Mancusi, Henner Hanssen, Simonetta Genovesi, Empar Lurbe, Gianfranco Parati, Skaiste Sendzikaite, Giuliana Valerio, Procolo Di Bonito, Giovanni Di Salvo, Marc Ferrini, Paul Leeson, Philip Moons, Constance G Weismann, Bryan Williams
European heart journal - 2022

Patient involvement in scientific journals: a new road for the European Journal of Cardiovascular

Nursing.

Benoit Mores, Inga Drossart, Catriona Jennings, Philip Moons
European journal of cardiovascular nursing - 2022

Illness Identity in Inflammatory Bowel

Jessica Rassart, Carine Van Wanseele, Lynn Debrun, Koen Matthijs, Philip Moons, Liesbet Van Bulck, Seher Arat, Lukas Van Oudenhove, Koen Luyckx
International journal of behavioral medicine - 2022

Social and emotional factors as predictors of poor outcomes following cardiac

surgery.

Pernille Fevejle Cromhout, Lau Caspar Thygesen, Philip Moons, Samer Nashef, Sune Damgaard, Selina Kikkenborg Berg
Interactive cardiovascular and thoracic surgery - 2022

Adverse functional remodelling of the subpulmonary left ventricle in patients with a systemic right ventricle is associated with clinical

outcome.

Béatrice Santens, Frederik Helsen, Alexander Van De Bruaene, Pieter De Meester, Anne-Laure Budts, Els Troost, Philip Moons, Piet Claus, Filip Rega, Jan Bogaert, Werner Budts
European heart journal. Cardiovascular Imaging - 2022

Are missed appointments in an outpatient clinic for adults with congenital heart disease the harbinger for care

gaps?

Eva Goossens, Kristien van Deyk, Werner Budts, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2022

Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Health Services Research - 2022

Research Electronic Data Capture (REDCap): tackling data collection, management, storage, and privacy

challenges.

Liesbet Van Bulck, Martien Wampers, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2022

Hypertensie bij kinderen en

adolescenten

Philip Moons
Percentiel/Percentile - 2022

Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South

Korea

Mariela Acuña Mora, K. Raymaekers, L. Van Bulck, E. Goossens, K. Luyckx, A. H. Kovacs, B. Andresen, J. R. Moon, A. Van De Bruaene, J. Rassart, Philip Moons
Health and Quality of Life Outcomes - 2022

Observable indicators of person-centred care: an interview study with patients, relatives and

professionals

Nina Ekman, Philip Moons, Charles Taft, E. Bostrom, Andreas Fors
BMJ Open - 2022

Comprehensive cardiac rehabilitation for patients following infective endocarditis: results of the randomized CopenHeartIE

Trine Bernholdt Rasmussen, Ann-Dorthe Zwisler, Signe Stelling Risom, Kirstine Lærum Sibilitz, Jan Christensen, Henning Bundgaard, Philip Moons, Lau Caspar Thygesen, Jane Lindschou, Tone Merete Norekvål, Selina Kikkenborg Berg
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2022

Definitions, instruments and correlates of patient empowerment: A descriptive

review.

Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Patient education and counseling - 2022

Health care experiences and aspects of diabetes management in the transition to adulthood in emerging adults with type

1 diabetes.

Carina Sparud Lundin, Mikaela Hällström, Ewa-Lena Bratt, Mariela Acuña Mora, Markus Saarijärvi, Philip Moons, Anna Lena Brorsson
48 Annual Conference, International Society for Pediatric and Adolescent Diabetes (ISPAD) 13-16 October, 2022, Abu Dhabi, Förenade Arabemiraten. - 2022

Short-term results of serial cardiopulmonary exercise testing in adults with repaired coarctation of the

aorta.

Thomas Couck, Roselien Buys, Béatrice Santens, Pieter De Meester, Kaatje Goetschalckx, Philip Moons, Els Troost, Alexander Van De Bruaene, Werner Budts
Acta cardiologica - 2022

Psychosocial profiles in adults congenital heart disease and transition to

adulthood

Philip Moons
. In Fuster V, Narula J, Vaishnava P, Leon MB, Callans DJ, Rumsfeld JS, Poppas A. (Eds). Fuster & Hurst’s The Heart 15th Edition - 2022

Care of the patient with inherited cardiovascular conditions and congenital heart

diseases

Jodie Ingles, Teofila Bueser, Pascal McKeown, Philip Moons, Donna Fitzsimons
In Jennings C, Astin F, Fitzsimons D, Lambrinou E, Neubeck L, Thompson DR. (Eds.) The ESC textbook of cardiovascular nursing. - 2022

The worldwide impact of COVID19 on clinical care and quality of life in the ACHD

population

Philip Moons
Scientific Sessions of the American Heart Association. Chicago IL, USA (invited lecture: 6 November) - 2022

The ACHD patient: Education, engagement,

empowerment

Philip Moons
London ACHD Advanced Symposium 2022. London, United Kingdom (invited lecture: 29 September) - 2022

Co-designing interventions for adults with congenital heart

Philip Moons
ESC congress 2022. Barcelona, Spain (invited lecture: 26 August) - 2022

Nurse-led research in congenital heart disease: From Cinderella to

Princess

Philip Moons
ESC congress 2022. Barcelona, Spain (invited lecture: 26 August) - 2022

The distinct but intertwined concepts of psychological wellbeing and quality of

Philip Moons
32nd International symposium on Adult Congenital Heart Disease. Cincinnati (OH), USA (invited lecture: 9 June) - 2022

APPROACH-IS: The sequel is even

better

Philip Moons
32nd International symposium on Adult Congenital Heart Disease. Cincinnati (OH), USA (invited lecture: 8 June) - 2022

Nursing roles in ACHD: The past, the present and the

future

Philip Moons
55th AEPC Annual Meeting. Geneva, Switzerland (invited lecture: 25 May) - 2022

Meet the editor: Top tips from the Editor in

Chief.

Philip Moons
ACNAP EuroHeartCare 2022, Madrid, Spain (invited lecture: 23 May 2022) - 2022

Propensity weighting: How to compare groups when groups are not

comparable?

Philip Moons
ACNAP EuroHeartCare 2022, Madrid, Spain (invited lecture: 21 May 2022) - 2022

Psychological determinants of quality of

life

Philip Moons
EuroACHD, Rotterdam, the Netherlands (invited lecture: 13 April 2022) - 2022

Concepts and theory building in nursing and midwifery (7th

edition).

Philip Moons
2022

Advanced roles in Nursing and Midwifery (3rd

edition)

Philip Moons
2022

A transition program is effective in improving adolescents’ knowledge about their congenital heart disease: The Stepstones-CHD

Ewa-Lena Bratt, Mariela Acuña Mora, Carina Sparud Lundin, Sandra Skogby, Asa Buström, Markus Saarijärvi, Katarina Hanseus, Annika Rydberg, Shalan Fadl, Eva Fernlund, Kalliopi Kazamia, Philip Moons
Arquivos Brasileiros de Cardiologica 2022; 119 (4 Suppl.1): 43 - 2022

Global prevalence of depression and anxiety in adolescents and adults with congenital heart disease: a systematic review and

meta-analysis

Philip Moons, Liesbet Van Bulck, Koen Luyckx
Arquivos Brasileiros de Cardiologica 2022; 119 (4 Suppl.1): 36 - 2022

Patient-Reported Outcomes in the aging population of adults with congenital heart disease: Findings from

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Mehanem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Adrienne Kovacs
32nd International Symposium on Adult Congenital Heart Disease - Cincinnati, 8-11 June 2022 - 2022

End-of-life and palliative care provision to adults with congenital heart disease: mortality follow-back study using administrative

data

Liesbet Van Bulck, Eva Goossens, Lucas Morin, Koen Luyckx, Fouke Ombelet, Ruben Willems, Werner Budts, Katya De Groote, Julie De Backer, Lieven Annemans, Stéphane Moniotte, Michele de Hosson, Ariane Marelli, Philip Moons
European Heart Journal 2022; 43 (suppl 2): ehac544.1841 - 2022

Adolescents with CHD – Is their illness perception impacting quality of

life?

Asa Buström, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt, Mariela Acuña Mora
Cardiology in the Young 2022; 32 (suppl 2): S272-S273. - 2022

Healthcare use at the end of life of patients with congenital heart disease: does heart failure

matter?

Liesbet Van Bulck, Eva Goossens, Lucas Morin, Koen Luyckx, Fouke Ombelet, Ruben Willems, Werner Budts, Katya De Groote, Julie De Backer, Stéphane Moniotte, Michele de Hosson, Ariane Marelli, Philip Moons
European Journal of Cardiovascular Nursing 2022; 21 (suppl 1): zvac060.028. - 2022

Heart failure hospitalization in adult patients with congenital heart disease: risk factors for repeated

admissions

H Scherrenberg, Pieter De Meester, Els Troost, Béatrice Santens, Philip Moons, Werner Budts, Alexander Van De Bruaene
Acta Cardiologica 2022; 77 (suppl 1): 45 - 2022

The COVID-19 pandemic as experienced by adults with congenital heart disease from Belgium, Norway, and South Korea: impact on life domains, patient-reported outcomes, and experiences with

Philip Moons, Eva Goossens, Koen Luyckx, Adrienne H Kovacs, Brith Andresen, Ju Ryoung Moon, Alexander Van De Bruaene, Jessica Rassart, Liesbet Van Bulck
European journal of cardiovascular nursing - 2022

The STEPSTONES transition program for adolescents with congenital heart disease is effective in improving patient empowerment: a randomized controlled

Ewa-Lena Bratt, Mariela Acuña Mora, Carina Sparud Lundin, Markus Saarijärvi, Åsa Burström, Sandra Skogby, Eva Fernlund, Shalan Fadl, Annika Rydberg, Katarina Hanseus, Kazamia Kalliopi, Philip Moons
ESC 2022 - 2022

Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart

Association.

Anitha S John, Jamie L Jackson, Philip Moons, Karen Uzark, Andrew S Mackie, Susan Timmins, Keila N Lopez, Adrienne H Kovacs, Michelle Gurvitz
Journal of the American Heart Association - 2022

Cost-effectiveness of a transition program for adolescents with congenital heart disease: The Stepstones

Markus Saarijärvi, Ewa-Lena Bratt, Philip Moons, Hanna Gyllensten
55th annual meeting for European Paediatric and Congenital Cardiology AEPC. Geneva. May 25-28th - 2022

Born to Age - When Adult Congenital Heart Disease Converges with

Geroscience

Philip Moons, Ariane Marelli
JACC Advances - 2022

Aging in adult congenital heart disease and advance care

planning

Philip Moons
Cardiovascular Spring Meeting – Virtual conference: 17/3/2022 - 2022

2020 ESC Guidelines for the management of adult congenital heart

Helmut Baumgartner, Julie De Backer, Sonya V Babu-Narayan, Werner Budts, Massimo Chessa, Gerhard-Paul Diller, Bernard Lung, Jolanda Kluin, Irene M Lang, Folkert Meijboom, Philip Moons, Barbara J M Mulder, Erwin Oechslin, Jolien W Roos-Hesselink, Markus Schwerzmann, Lars Sondergaard, Katja Zeppenfeld
European heart journal - 2021

A new editorial team for the European Journal of Cardiovascular Nursing: building on successes and mapping new

horizons.

Philip Moons, Jeroen M Hendriks, Catriona Jennings, Sandra Lauck
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021

Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational

components

Sandra Skogby, Ewa-Lena Bratt, Bengt Johansson, Philip Moons, Eva Goossens
BMC Health Services Research - 2021

Influenza vaccination in congenital heart disease in the pre-COVID19 era: Coverage rate, patient characteristics and

outcome.

Philip Moons, Steffen Fieuws, Corinne Vandermeulen, Fouke Ombelet, Ruben Willems, Eva Goossens, Liesbet Van Bulck, Michèle de Hosson, Lieven Annemans, Werner Budts, Julie De Backer, Stéphane Moniotte, Arianne Marelli, Katya De Groote
The Canadian journal of cardiology - 2021

Illness identity in adults with congenital heart disease: Longitudinal trajectories and associations with patient-reported outcomes and healthcare

use.

Liesbet Van Bulck, Eva Goossens, Silke Apers, Philip Moons, Koen Luyckx
Journal of advanced nursing - 2021

A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare

Providers.

Yuehtao Chiang, Peikwei Tsay, Chiwen Chen, Chienlung Hsu, Hsingyi Yu, Chiwen Chang, Fusung Lo, Philip Moons
International journal of environmental research and public health - 2021

Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness

perceptions.

Kristen R Fox, Rose Y Hardy, Philip Moons, Adrienne H Kovacs, Koen Luyckx, Silke Apers, Stephen C Cook, Gruschen Veldtman, Susan M Fernandes, Kamila White, Shelby Kutty, Jamie L Jackson
Journal of behavioral medicine - 2021

Mechanisms of Impact and Experiences of a Person-Centred Transition Programme for Adolescents With Chd: The Stepstones

Project

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Health Services Research - 2021

Illness identity and adjusting to type I diabetes: A four-wave longitudinal

Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global

Jessica Rassart, Leen Oris, Sofie Prikken, Eveline R Goethals, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx
Health psychology : official journal of the Division of Health Psychology, American Psychological Association - 2021

ARCH)

Philip Moons, Ewa-Lena Bratt, J De Backer, Eva Goossens, Tim Hornung, O Tutarel, Liesl Zühlke , A Jairo Araujo, Edward Callus, H Gabriel, S Nauman, S Karen, Amy Verstappen, Y Hsiao-Ling , C Thomet
European Heart Journal - 2021

Lifespan Perspective on Congenital Heart Disease Research: JACC State-of-the-Art

Review.

Gerhard-Paul Diller, Alexandra Arvanitaki, Alexander R Opotowsky, Kathy Jenkins, Philip Moons, Alexander Kempny, Animesh Tandon, Andrew Redington, Paul Khairy, Seema Mital, Michael Α Gatzoulis, Yue Li, Ariane Marelli
Journal of the American College of Cardiology - 2021

Flash mob studies: a novel method to accelerate the research

process.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021

One year of methods corner: the way forward to innovate research in cardiovascular

Philip Moons, Christopher S Lee
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021

Different levels of care for follow-up of adults with congenital heart disease: a cost analysis scrutinizing the impact on medical costs, hospitalizations, and emergency department

visits.

Ruben Willems, Fouke Ombelet, Eva Goossens, Katya De Groote, Werner Budts, Stéphane Moniotte, Michèle de Hosson, Liesbet Van Bulck, Ariane Marelli, Philip Moons, Julie De Backer, Lieven Annemans
The European journal of health economics : HEPAC : health economics in prevention and care - 2021

Diabetes-specific friend support in emerging adults with type 1 diabetes: Does satisfaction with support

matter?

Koen Raymaekers, Vicki S Helgeson, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Cynthia A Berg, Koen Luyckx
Journal of behavioral medicine - 2021

Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (From

APPROACH-IS).

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers, Adrienne H Kovacs
The American journal of cardiology - 2021

Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and

Meta-Analysis.

Philip Moons, Sandra Skogby, Ewa-Lena Bratt, Liesl Zühlke, Ariane Marelli, Eva Goossens
Journal of the American Heart Association - 2021

Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15

Countries.

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Fouke Ombelet, Silke Apers, Adrienne H Kovacs
The Canadian journal of cardiology - 2021

Comparison of risk stratification models for pregnancy in congenital heart

Nathalie Denayer, Els Troost, Béatrice Santens, Pieter De Meester, Leen Roggen, Philip Moons, Kristel Van Calsteren, Werner Budts, Alexander Van De Bruaene
International journal of cardiology - 2021

Supplementing prediction by EuroSCORE with social and patient-reported measures among patients undergoing cardiac

surgery.

Pernille F Cromhout, Lau C Thygesen, Philip Moons, Samer Nashef, Sune Damgaard, Anne V Christensen, Trine B Rasmussen, Britt Borregaard, Lars Thrysoee, Charlotte B Thorup, Rikke E Mols, Knud Juel, Selina K Berg
Journal of cardiac surgery - 2021

Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of

Philip Moons, Silke Apers, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Koen Luyckx
European journal of cardiovascular nursing - 2021

Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in

Sweden

Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
BMJ Open - 2021

Heart failure related to adult congenital heart disease: prevalence, outcome and risk

factors.

Stijn Arnaert, Pieter De Meester, Els Troost, Walter Droogne, Lucas Van Aelst, Johan Van Cleemput, Gabor Voros, Marc Gewillig, Bjorn Cools, Philip Moons, Filip Rega, Bart Meyns, Zhenyu Zhang, Werner Budts, Alexander Van De Bruaene
ESC heart failure - 2021

Atrial Arrhythmias and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International

Benjamin Casteigt, Michelle Samuel, Laurence Laplante, Azadeh Shohoudi, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Judith Brouillette, Philip Moons, Paul Khairy
Heart rhythm - 2021

Phenotypes of adults with congenital heart disease around the globe: a cluster

analysis.

Edward Callus, Silvana Pagliuca, Sara Boveri, Federico Ambrogi, Koen Luyckx, Adrienne H Kovacs, Silke Apers, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Shelby Kutty, Philip Moons
Health and quality of life outcomes - 2021

Transfer and transition practices in 96 European adult congenital heart disease

centres.

Corina Thomet, Markus Schwerzmann, Werner Budts, Julie De Backer, Massimo Chessa, Gerhard Diller, Andreas Eicken, Harald Gabriel, Pastora Gallego, Alessandro Giamberti, Jolien Roos-Hesselink, Lorna Swan, Gary Webb, Philip Moons
International journal of cardiology - 2021

15-Year follow-up of regional right and left ventricular function after the Senning operation: a Colour-Doppler myocardial imaging

Ana Moya, Pieter De Meester, Els Troost, Leen Roggen, Frank Weidemann, Philip Moons, Benedicte Eyskens, Piet Claus, Werner Budts, Alexander Van De Bruaene
Acta cardiologica - 2021

Provision of palliative care to adults with congenital heart disease at the end of

life

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Fouke Ombelet, Ruben Willems, Michele de Hosson, Lieven Annemans, Werner Budts, Julie De Backer, Stephane Moniotte, Ariane Marelli, Katya De Groote, Philip Moons
European Journal of Cardiovascular Nursing 2021; 20: i31-i32 - 2021

Identity functioning and eating disorder symptomatology: The role of emotion regulation

strategies

Margaux Verschueren, Laurence Claes, Nina Palmeroni, Leni Raemen, T Buelens, Philip Moons, Koen Luyckx
ISRI: International Society for Research on Identity, 3-4 June 2021. - 2021

Exercise prescription as

medicine

George Lui, Philip Moons
International Journal of Cardiology Congenital Heart Disease - 2021

Rapid reviews: the pros and cons of an accelerated review

process.

Philip Moons, Eva Goossens, David R Thompson
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021

Patient empowerment: a way to improve the communication between young persons and healthcare

providers

Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
European Heart Journal; 42 (Suppl 1): 3120 - 2021

Heart failure hospitalization in adult patients with congenital heart disease: risk factors for repeated

admissions

H Scherrenberg, Pieter De Meester, Els Troost, Beatrice Santens, Philip Moons, Werner Budts, Alexander Van De Bruaene
European Heart Journal; 42 (suppl 1): 1883 - 2021

Short-term prognostic value of heart failure diagnosis in a contemporary cohort of patients with

ACHD

L Maesen, Pieter De Meester, Beatrice Santens, Els Troost, Werner Budts, Philip Moons, Alexander Van De Bruaene
European Heart Journal; 42 (suppl 1): 1882 - 2021

Pain in adults with congenital heart disease - An international

perspective

Allison Leibold, Erin Eichler, Sukyung Chung, Philip Moons, Adrienne Kovacs, Koen Luyckx, Silke Apers, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Jou-Kou Wang, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Kamila White, Edward Callus, Shelby Kutty, Susan Fernandes
International Journal of Cardiology Congenital Heart Disease - 2021

Covered stent placement for treatment of coarctation of the aorta: immediate and long-term

results.

Jan Stassen, Pieter De Meester, Els Troost, Leen Roggen, Philip Moons, Marc Gewillig, Alexander Van De Bruaene, Werner Budts
Acta cardiologica - 2021

Self-rated health status (EQ-5D) in adults with congenital heart defect around the

globe

Goedele Belaen, Philip Moons, Eva Goossens, Koen Luyckx, Silke Apers, Adrienne Kovacs, Erwin Oechslin, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Chun-Wei Lu, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Marianne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan Fernandes, Kamila White, Edward Callus, Shelby Kutty, Liesbet Van Bulck
EuroGUCH 2021, the 12th European Meeting on Adult Congenital Disease, 4-5 May, 2021. - 2021

Patient Reported Outcome of Adults with CHD Across the

World

Philip Moons
Asia-Pacific Pediatric Cardiac Society (APPCS 2021), 17-18 July 2021. - 2021

Transition in patients with developmental

disabilities

Philip Moons
31st International Symposium on Adult Congenital Heart Disease – Virtual conference (invited lecture: 15 October 2021) - 2021

The Stepstones project: Development and first

experiences

Philip Moons
Third European Symposium on Transition – Virtual conference (invited lecture: 9 September 2021) - 2021

Patient-Reported Outcomes next level: Contemporary issues in PRO

Philip Moons
PRO conference 2021 – Virtual conference (invited lecture: 10 June 2021) - 2021

Participants and non-participants – factors affecting representativeness and reach in randomized controlled trials evaluating the effectiveness of complex

interventions

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
Nordic Conference in Nursing Research, Copenhagen 4-6th October 2021 - 2021

How to select and measure PROMS and

PREMS?

Philip Moons
54th Annual Meeting of the Association for European Paediatric and Congenital Cardiology - Virtual Meeting. (invited lecture: 27 May 2021) - 2021

Patient engagement – Transfer and

transition

Philip Moons
12th European Meeting on Adult Congenital Heart Disease -EuroGUCH 2021. (invited lecture: 4 May 2021) - 2021

Quality of life in patients with CHD from a life-cycle

perspective

Philip Moons
54th Annual Meeting of the Association for European Paediatric and Congenital Cardiology - Virtual Meeting. (invited lecture: 25 May 2021) - 2021

Identity Functioning and Eating Disorder Symptomatology: The Role of Cognitive Emotion Regulation

Strategies.

Margaux Verschueren, Laurence Claes, Nina Palmeroni, Leni Raemen, Tinne Buelens, Philip Moons, Koen Luyckx
Frontiers in psychology - 2021

Identity formation in adults with congenital heart disease: what have we learned so

far?

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Philip Moons
International Journal of Cardiology Congenital Heart Disease - 2021

Factors perceived by young adults with congenital heart disease to affect continuing follow-up care after

transfer

Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
Association for European Paediatric and Congenital Cardiology - AEPC 2021, Gothenburg - 2021

Florence Nightingale lecture: The contribution of empirical research in nursing to the care for patients with

CHD

Philip Moons
54th Annual Meeting of the Association for European Paediatric and Congenital Cardiology - Virtual Meeting. (invited lecture: 26 May 2021) - 2021

What we have learnt from

Philip Moons
Newcastle Congenital Heart Disease Research Group Seminar. (invited lecture: 22 January 2021) - 2021

Patient-reported outcomes in adults with congenital heart disease: What did we learn from

APPROACH-IS?

Philip Moons, Koen Luyckx, Adrienne Kovacs
International Journal of Cardiology Congenital Heart Disease - 2021

Long-Term Healthcare Utilization, Medical Cost, and Societal Cost in Adult Congenital Heart

R. Willems, F. Ombelet, E. Goossens, K. De Groote, W. Budts, S. Moniotte, M. de Hosson, L. Van Bulck, A. Marelli, Philip Moons, J. De Backer, L. Annemans
Congenital Heart Disease - 2020

Facilitators of and barriers to reducing thirty-day readmissions and improving patient-reported outcomes after surgical aortic valve replacement: a process evaluation of the AVRre

Stein Ove Danielsen, Philip Moons, Marit Leegaard, Svein Solheim, Theis Tønnessen, Irene Lie
BMC health services research - 2020

Pulmonary Hemodynamics and Outcome in a Large Cohort of Patients with Sinus Venosus Septal

Defect

L. van Dessel, B. Santens, E. Troost, P. De Meester, L. Roggen, F. Rega, B. Meyns, B. Cools, M. Gewillig, Philip Moons, L. Meier, W. Budts, A. Van de Bruaene
Congenital Heart Disease - 2020

Newly Developed Adult Congenital Heart Disease Anatomic and Physiological Classification: First Predictive Validity

Evaluation.

Fouke Ombelet, Eva Goossens, Alexander Van De Bruaene, Werner Budts, Philip Moons
Journal of the American Heart Association - 2020

Quality-of-life research in the European Journal of Cardiovascular Nursing: A call for more conceptual

scrutiny.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020

Nursing research in congenital heart disease has grown

up.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020

A Person-Centered Perspective on the Role of Peer Support and Extreme Peer Orientation in Youth with Type 1 Diabetes: A Longitudinal

Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease

Koen Raymaekers, Sofie Prikken, Leen Oris, Janne Vanhalst, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
Annals of behavioral medicine : a publication of the Society of Behavioral Medicine - 2020

(ISACHD).

Markus Schwerzmann, Eva Goossens, Pastora Gallego, Adrienne H Kovacs, Philip Moons, Lorna Swan, Daniel Tobler, Noémi de Stoutz, Harald Gabriel, Matthias Greutmann, Jolien W Roos-Hesselink, Piotr Z Sobanski, Corina Thomet
European heart journal - 2020

A state-of-the-art review of direct observation tools for assessing competency in person-centred

Nina Ekman, Charles Taft, Philip Moons, Åsa Mäkitalo, Boström Eva, Andreas Fors
International Journal of Nursing Studies - 2020

One in five patients with rapidly and persistently controlled early rheumatoid arthritis report poor well-being after 1 year of

treatment.

Kristien Van der Elst, Patrick Verschueren, Diederik De Cock, An De Groef, Veerle Stouten, Sofia Pazmino, Johanna Vriezekolk, Johan Joly, Philip Moons, René Westhovens
RMD open - 2020

Factors affecting adolescents’ participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Medical Research Methodology - 2020

Health behaviours reported by adults with congenital heart disease across 15

countries.

Christina E Holbein, James Peugh, Gruschen R Veldtman, Silke Apers, Koen Luyckx, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
European journal of preventive cardiology - 2020

Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15

countries.

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Silke Apers, Erwin Oechslin, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
BMC health services research - 2020

Energy Balance-Related Behaviors and Body Mass Index in Asian School-Aged Children With Congenital Heart

Fu-Ling Yang, Bih-Shya Gau, Hsiao-Ling Yang, Ming-Tai Lin, Philip Moons
The Journal of cardiovascular nursing - 2020

Comorbidity as a mediator of depression in adults with congenital heart disease: A population-based cohort

Hsiao-Ling Yang, Nien-Tzu Chang, Jou-Kou Wang, Chun-Wei Lu, Yong-Chen Huang, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020

Implantable Cardioverter-Defibrillators and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International

Valérie Lévesque, Laurence Laplante, Azadeh Shohoudi, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Judith Brouillette, Benjamin Casteigt, Philip Moons, Paul Khairy
Heart rhythm - 2020

Impact of the COVID-19 pandemic on ongoing cardiovascular research projects: considerations and

adaptations.

Liesbet Van Bulck, Adrienne H Kovacs, Eva Goossens, Koen Luyckx, Tiny Jaarsma, Anna Strömberg, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020

Illness intrusiveness in parents of youth with type 1 diabetes: A longitudinal

Sofie Prikken, Koen Raymaekers, Leen Oris, Ilse Weets, Philip Moons, Koen Luyckx
Pediatric diabetes - 2020

The challenge of non-adherence to early rehabilitation after coronary artery bypass surgery: Secondary results from the SheppHeartCABG

Ida E Højskov, Lau C Thygesen, Philip Moons, Ingrid Egerod, Peter S Olsen, Selina K Berg
European journal of cardiovascular nursing - 2020

A guide to improve your causal inferences from observational

data.

Koen Raymaekers, Koen Luyckx, Philip Moons
European journal of cardiovascular nursing - 2020

Chronic illness as a 'family disease': The need for appropriate scientific methods for dyadic

research.

Philip Moons, Sofie Prikken, Koen Luyckx
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020

Identity formation in adolescents and emerging adults with type 1

Margaux Verschueren, Leen Oris, Laurence Claes, Philip Moons, Ilse Weets, Koen Luyckx
Psychology, health & medicine - 2020

Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study

protocol

Anna Lena Brorsson, Ewa-Lena Bratt, Philip Moons, A. Ek, E. Jelleryd, T. Torbjornsdotter, Carina Sparud Lundin
BMJ Open - 2020

Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16-25 years old transition

period.

Yueh-Tao Chiang, Hsing-Yi Yu, Fu-Sung Lo, Chi-Wen Chen, Tzu-Ting Huang, Chi-Wen Chang, Philip Moons
International journal of qualitative studies on health and well-being - 2020

The Social Context and Illness Identity in Youth with Type 1 Diabetes: A Three-Wave Longitudinal

Koen Raymaekers, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Leen Oris, Ilse Weets, Koen Luyckx
Journal of youth and adolescence - 2020

Different Levels of Care for Follow-up of Adults with Congenital Heart

Ruben Willems, Fouke Ombelet, Eva Goossens, Katya De Groote, Werner Budts, Stephane Moniotte, Michele de Hosson, Liesbet Van Bulck, Ariane Marelli, Philip Moons, Julie De Backer, Lieven Annemans
Value in Health. 23, Suppl. 2, S408 - 2020

Empowering young persons during the transition to

adulthood

Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Transition from Pediatric to Adult Healthcare Services for Young Adults with Long-Term Conditions: An International Perspective on Nurses Roles and Interventions - 2020

Creating the BELgian COngenital heart disease database combining administrative and clinical data (BELCODAC): Rationale, design and

methodology.

Fouke Ombelet, Eva Goossens, Ruben Willems, Lieven Annemans, Werner Budts, Julie De Backer, Katya De Groote, Stéphane Moniotte, Liesbet Van Bulck, Ariane Marelli, Philip Moons
International journal of cardiology - 2020

Caring for Child with CVD: From Childhood to

Adolescence

Philip Moons
Scientific Sessions 2020 of the American Heart Association – The Virtual Experience. (invited lecture: 13 Nov) - 2020

Process outcomes and interventions in improving health care transition in youth with congenital health

Philip Moons
21st Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care (30 Oct 2020) - 2020

Patient-Reported Outcomes in Adults with Congenital Heart Disease who are Recovering after

Hospitalization

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Jou-Kou Wang, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan Fernandes, Kamila White, Edward Callus, Shelby Kutty, Apers Silke, Adrienne Kovacs
30th International Symposium on Adult Congenital Heart Disease - Virtual, 5-9 Oct 2020. - 2020

APPROACH-IS

II

Philip Moons
30th International symposium on Adult Congenital Heart Disease. Cincinnati Children’s Hospital – Virtual - 2020

The ACHD

nurse

Philip Moons
30th International symposium on Adult Congenital Heart Disease. Cincinnati Children’s Hospital – Virtual - 2020

The 2020 guidelines in adult congenital heart disease (ACHD): What’s in them for nurses &

AHPs?

Philip Moons, Eva Goossens
ACNAP Webinar, organised by the European Society of Cardiology - 2020

Physical activity in adults with congenital heart

Philip Moons
European Society of Cardiology Congress 2020 – The digital experience - 2020

How to assess quality of life in cardiac patients to follow outcomes of

Philip Moons
European Society of Cardiology Congress 2020 – The digital experience - 2020

Outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart

Sandra Skogby, Philip Moons, Bengt Johansson, Jan Sunnegårdh, Christina Christersson, Edit Nagy, Per Winberg, Katarina Hanséus, Aleksandra Trzebiatowska-Krzynska, Shalan Fadl, Eva Fernlund, Kalliopi Kazamia, Annika Rydberg, Liesl Zühlke, Eva Goossens, Ewa-Lena Bratt
International journal of cardiology - 2020

Impact of telephone follow-up and 24/7 hotline on 30-day readmission rates following aortic valve replacement -A randomized controlled

Stein Ove Danielsen, Philip Moons, Leiv Sandvik, Marit Leegaard, Svein Solheim, Theis Tønnessen, Irene Lie
International journal of cardiology - 2020

Propensity weighting: how to minimise comparative bias in non-randomised

studies?

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020

Outcome of the Glenn procedure as definitive palliation in single ventricle

patients.

Astrid Vermaut, Pieter De Meester, Els Troost, Leen Roggen, Eva Goossens, Philip Moons, Filip Rega, Bart Meyns, Marc Gewillig, Werner Budts, Alexander Van De Bruaene
International journal of cardiology - 2020

Eating Disorder Symptomatology in Adolescent Boys and Girls: Identifying Distinct Developmental Trajectory

Classes.

Margaux Verschueren, Laurence Claes, Nina Palmeroni, Annabel Bogaerts, Amarendra Gandhi, Philip Moons, Koen Luyckx
Journal of youth and adolescence - 2020

Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program - the STEPSTONES

project.

Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of pediatric nursing - 2020

Processutvärdering av ett personcentrerat övergångsprogram för ungdomar med medfödda hjärtfel i övergång till vuxenlivet –

STEPSTONES-projektet

Markus Saarijärvi, Lars Wallin, Hanna Gyllensten, Philip Moons, Ewa-Lena Bratt
Centrum för personcentrerad vård (GPCC) 10-årsjubileumskonferens 6-7 feb 2020, Konferenscentrum Wallenberg vid Sahlgrenska akademin i Göteborg - 2020

Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their

Parents

A. Burstrom, Mariela Acuña Mora, M. Ojmyr-Joelsson, Carina Sparud Lundin, A. Rydberg, K. Hanseus, B. Frenckner, M. Nisell, Philip Moons, Ewa-Lena Bratt
Journal of Family Nursing - 2019

Parental illness intrusiveness and youth glycaemic control in type 1 diabetes: intergenerational associations and

processes.

Sofie Prikken, Leen Oris, Jessica Rassart, Lies Christine Missotten, Ilse Weets, Philip Moons, Liesbet Goubert, Koen Luyckx
Psychology & health - 2019

Prevalence and Effects of Cigarette Smoking, Cannabis Consumption, and Co-use in Adults From 15 Countries With Congenital Heart

Philip Moons, Koen Luyckx, Adrienne H Kovacs, Christina E Holbein, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers
The Canadian journal of cardiology - 2019

The Scope of Research on Transfer and Transition in Young Persons With Chronic

Conditions

Mariela Acuña Mora, Markus Saarijärvi, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Journal of Adolescent Health - 2019

Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative

studies.

Ann Kristin Bjørnnes, Philip Moons, Monica Parry, Sigrun Halvorsen, Theis Tønnessen, Irene Lie
BMJ open - 2019

Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES

project).

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMJ open - 2019

Quality of life research in adult patients with congenital heart disease: current status and the way

forward.

Philip Moons, Koen Luyckx
Acta paediatrica - 2019

Staffing, activities, and infrastructure in 96 specialised adult congenital heart disease clinics in

Europe.

Corina Thomet, Philip Moons, Werner Budts, Julie De Backer, Massimo Chessa, Gerhard Diller, Andreas Eicken, Harald Gabriel, Pastora Gallego, Alessandro Giamberti, Jolien Roos-Hesselink, Lorna Swan, Gary Webb, Markus Schwerzmann
International journal of cardiology - 2019

Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system

performance.

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Silke Apers, Adrienne H Kovacs, Corina Thomet, Werner Budts, Maayke A Sluman, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Maryanne Caruana, Alexandra Soufi, Edward Callus, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2019

International research in cardiovascular nursing: Getting insight in the role of system

factors.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2019

Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan

Circulation.

Christina E Holbein, Gruschen R Veldtman, Philip Moons, Adrienne H Kovacs, Koen Luyckx, Silke Apers, Shanti Chidambarathanu, Alexandra Soufi, Katrine Eriksen, Jamie L Jackson, Junko Enomoto, Susan M Fernandes, Bengt Johansson, Luis Alday, Mikael Dellborg, Malin Berghammer, Samuel Menahem, Maryanne Caruana, Shelby Kutty, Andrew S Mackie, Corina Thomet, Werner Budts, Kamila White, Maayke A Sluman, Edward Callus, Stephen C Cook, Paul Khairy, Ari Cedars
The American journal of cardiology - 2019

Education as important predictor for successful employment in adults with congenital heart disease

worldwide.

Maayke A Sluman, Silke Apers, Judith K Sluiter, Karen Nieuwenhuijsen, Philip Moons, Koen Luyckx, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Kathy Gosney, Alexandra Soufi, Susan M Fernandes, Kamila S White, Edward Callus, Shelby Kutty, Berto J Bouma, Barbara J M Mulder
Congenital heart disease - 2019

Geographical variation and predictors of physical activity level in adults with congenital heart

Lena Larsson, Bengt Johansson, Camilla Sandberg, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Gwen Rempel, Samuel Menahem, Maryanne Caruana, Martha Tomlin, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
International journal of cardiology. Heart & vasculature - 2019

Serial pulmonary vascular resistance assessment in patients late after ventricular septal defect

repair.

Charlien Gabriels, Roselien Buys, Alexander Van de Bruaene, Pieter De Meester, Kaatje Goetschalckx, Frederik Helsen, Philip Moons, Eva Goossens, Filip Rega, Jens-Uwe Voigt, Marion Delcroix, Werner Budts
International journal of cardiology - 2019

Illness identity: Capturing the influence of illness on the person's sense of

self.

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Philip Moons
European journal of cardiovascular nursing - 2019

Patient reported outcome data from the Care in Early Rheumatoid Arthritis trial: Opportunities for broadening the scope of treating to

target.

Kristien Van der Elst, Patrick Verschueren, Veerle Stouten, Sofia Pazmino, An De Groef, Diederik De Cock, Johan Joly, Philip Moons, René Westhovens
Arthritis care & research - 2019

Patient empowerment and its correlates in young persons with congenital heart

Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Journal of Cardiovascular Nursing - 2019

Early physical and psycho-educational rehabilitation in patients with coronary artery bypass grafting: A randomized controlled

Ida Elisabeth Højskov, Philip Moons, Ingrid Egerod, Peter Skov Olsen, Lau Caspar Thygesen, Niels Viggo Hansen, Søren La Cour, Krisitna Hindhede Bech, Britt Borregaard, Christian Gluud, Per Winkel, Jane Lindschou, Selina Kikkenborg Berg
Journal of Rehabilitation Medicine - 2019

Advanced care planning in adult congenital heart disease: Transitioning from repair to palliation and end-of-life

Els Troost, Leen Roggen, Eva Goossens, Philip Moons, Pieter De Meester, Alexander Van De Bruaene, Werner Budts
International journal of cardiology - 2019

Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult

Care.

Åsa Burström, Mariela Acuña Mora, Maria Öjmyr-Joelsson, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Björn Frenckner, Margret Nisell, Philip Moons, Ewa-Lena Bratt
Journal of advanced nursing - 2019

Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the

globe.

Philip Moons, Koen Luyckx, Jessie Dezutter, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers
International journal of cardiology - 2019

A triadic perspective on control perceptions in youth with type 1 diabetes and their parents: Associations with treatment adherence and glycemic

control.

Sofie Prikken, Koen Raymaekers, Leen Oris, Jessica Rassart, Philip Moons, Koen Luyckx
Diabetes research and clinical practice - 2019

The Stepstones project: How to optimally transition adolescents to ACHD

care?

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 24 May) - 2019

Psychological sequelae after infective

endocarditis

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 24 May) - 2019

What of the Senning and Mustard patients? Quality of

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 23 May) - 2019

Transposition of the great arteries. Most importantly, how are adults with an arterial switch

doing?

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 23 May) - 2019

Patient wellness – assessing and maximizing quality of life for those we

serve

Philip Moons
The 29th annual international symposium on congenital heart disease in the adult. Stevenson WA, USA (invited lecture: 30 May) - 2019

Pre-transfer transition: what

works?

Philip Moons
The 29th annual international symposium on congenital heart disease in the adult. Stevenson WA, USA (invited lecture: 31 May) - 2019

An international perspective on issues in nursing

education

Philip Moons
Nursing Education Association and Stellenbosch University. Stellenbosch, South Africa - 2019

Sport participation associated with fewer anxiety symptoms in adult congenital heart

Jong Ko, Adrienne H Kovacs, Kirsten Tecson, Junko Enomoto, Philip Moons, Ari M Cedars
Circulation 2019; 139 (suppl 1): P313. - 2019

Functionally univentricular heart beyond childhood: Physical activity and quality of

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 25 May) - 2019

Heropnames in het ziekenhuis na een chirurgische of transkathetervervanging van de

aortaklep

Philip Moons, Stein Danielsen, Irene Lie
Bloedvaten, Hart, Longen/Vaisseaux, Coeur, Poumons - 2019

Patient perspective on mobile health in congenital heart

Philip Moons
Johns Hopkins Bloomberg School of Public Health. Baltimore, MD, USA - 2019

Aangeboren hartafwijkingen bij

volwassenen

Philip Moons, Danielle Robbers-Visser, Folkert Meijboom
Aangeboren hartafwijkingen bij volwassenen. Mulder BJM, Pieper PG, Meijboom FJ, Bouma B, van Melle JP, Hamer JPM. (Eds) - 2019

Burden of itch in ichthyosis: a multicentre study in 94

patients.

A M De Palma, J Mazereeuw-Hautier, K Giehl, A Hernández, M Merlos, Philip Moons, M A Morren
Journal of the European Academy of Dermatology and Venereology : JEADV - 2019

A systematic review of quality of life research in medicine and health

sciences.

K Haraldstad, A Wahl, R Andenæs, J R Andersen, M H Andersen, E Beisland, C R Borge, E Engebretsen, M Eisemann, L Halvorsrud, T A Hanssen, A Haugstvedt, T Haugland, V A Johansen, M H Larsen, L Løvereide, B Løyland, L G Kvarme, Philip Moons, T M Norekvål, L Ribu, G E Rohde, K H Urstad, S Helseth
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation - 2019

Preparing the young adult with complex congenital cardiac disease to transfer from paediatric to adult

Philip Moons
In Wernovsky G, Anderson RH, Kumar K, Mussatto K, Redington AR, Tweddell JS, Tretter JT. Anderson’s Pediatric Cardiology (4th Ed.) (pp1451-1454) - 2019

Physical functioning and quality of life in different congenital heart defects: Comparative analysis in 3,589 patients from 15

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, CW Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Fouke Ombelet, Silke Apers, Adrienne H Kovacs
Circulation 2019; 140 suppl 1: A16534. - 2019

Illness identity and diabetes-specific functioning across adolescence and emerging adulthood: A four-wave longitudinal

Jessica Rassart, Leen Oris, Sofie Prikken, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx, Evelyne Goethals
45th Annual Conference ISPAD, Oct 30 – Nov 2, 2019, Boston, USA - 2019

Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p29-30. - 2019

Unraveling the role of healthcare system factors for continuing care of adolescents with congenital or rheumatic heart disease: Rationale and methods of the international

Adole7C-project

Ewa-Lena Bratt, Sandra Skogby, Liesl Zühlke, Bongani Mayosi, Bengt Johansson, Mikael Dellborg, Christina Christersson, Edit Nagy, Per Winberg, Ulf Thilén, Katarina Hanseus, Aleksandra Krzynska, Shalan Fadi, Eva Fernlund, Kalliopi Kazamia, Annika Rydberg, Jan Sunnegårdh, Eva Goossens, Philip Moons
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p31-32. - 2019

The role of peers for general and diabetes-specific functioning throughout adolescence and emerging

adulthood.

Koen Raymaekers, Janne Vanhalst, Sofie Prikken, Leen Oris, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
European Health Psychology Society conference, 3-8 Sept 2019, Dubrovnik, Croatia. - 2019

One in five patients with rapidly and persistenly controlled early rheumatoid arthritis report poor wellbeing after one year of

treatment

Kristien Van der Elst, Patrick Verschueren, Diederik De Cock, An De Groef, Veerle Stouten, Sofia Pazmino, Joke Vriezekolk, Johan Joly, Philip Moons, Rene Westhovens
Annals of Rheumatic Diseases 2019; 78: 323-324. - 2019

Absence at work or school is associated with illness identity in adults with congenital heart

defects

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
Abstract book Care4 congress 2019, p76 - 2019

Standing on the shoulders of giants: The journey from infant survival to longevity in congenital heart

Philip Moons
Canadian Cardiovascular Congress 2019, Montréal, Canada (invited lecture: 26 Oct) - 2019

European initiatives in transition to adult CHD

Philip Moons
Canadian Cardiovascular Congress 2019, Montréal, Canada (invited lecture: 25 Oct) - 2019

Research in transitional care: Many miles to

go.

Philip Moons
Event Milestone project, Kortenberg, Belgium (invited lecture: 26 September) - 2019

Propensity weighting: How to compare groups when groups are not

comparable?

Philip Moons
LivsForsk annual meeting, Stavanger, Norway (invited lecture: 17 Sept) - 2019

Challenges and opportunities in international collaboration in quality-of-life

Philip Moons
LivsForsk annual meeting, Stavanger, Norway (invited lecture: 17 Sept) - 2019

Patient perspective on mobile health in congenital heart disease: Focus on motivation and

lifestyle

Philip Moons
CSANZ2019 – 67th annual scientific meeting of the cardiac society of Australia and New Zealand, Adelaide, Australia - 2019

Tips and tricks for writing scientific papers and presenting your data for

conferences

Philip Moons
CSANZ2019 – 67th annual scientific meeting of the cardiac society of Australia and New Zealand, Adelaide, Australia - 2019

Attaining best function and quality of life in congenital heart

Philip Moons
ACRA2019 - 29th annual scientific meeting of the Australian Cardiovascular Health and Rehabilitation Association, Sydney, Australia - 2019

Exercise and quality of life in congenital heart

Philip Moons
ACRA2019 - 29th annual scientific meeting of the Australian Cardiovascular Health and Rehabilitation Association, Sydney, Australia - 2019

Transition in care: Evaluating complex interventions and translating the MRC framework for complex

interventions

Philip Moons
University of Technology Sydney, Sydney, Australia - 2019

Congenital heart disease: Emerging need for geriatric care and advance care

planning

Philip Moons
Swiss Society of Cardiology/Swiss Society of Cardiac Surgery Joint Annual Meeting 2019. Interlaken, Switzerland - 2019

Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international

Jong Mi Ko, Kamila S White, Adrienne H Kovacs, Kristen M Tecson, Silke Apers, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Edward Callus, Shelby Kutty, Philip Moons, Ari M Cedars
Journal of psychosomatic research - 2019

Predicting 15-Year Mortality in Adults With Congenital Heart Disease Using Disease Severity and Functional

Indices.

Fouke Ombelet, Eva Goossens, Silke Apers, Werner Budts, Marc Gewillig, Philip Moons
The Canadian journal of cardiology - 2019

Updating EuroSCORE by including emotional, behavioural, social and functional factors to the risk assessment of patients undergoing cardiac surgery: a study

protocol.

Pernille Fevejle Cromhout, Selina Kikkenborg Berg, Philip Moons, Sune Damgaard, Samer Nashef, Lau Caspar Thygesen
BMJ open - 2019

Transition program for adolescents with congenital heart disease in transition to adulthood: protocol and rationale for a mixed-methods process evaluation study (the STEPSTONES

project)

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
Knowledge Utilization (KU) Colloquium 2019, 25-28 juni, Montebello, Quebec, Canada - 2019

Transition program to empower adolescents with chronic conditions in their transition to adulthood: methods and rationale for the STEPSTONES

Markus Saarijärvi, Mariela Acuña Mora, Carina Sparud Lundin, Lars Wallin, Hanna Gyllensten, Ewa-Lena Bratt, Philip Moons
Forte Talks, 26-27 mars 2019, Stockholm - 2019

Quality of life in adults with congenital heart disease: A global

view

Philip Moons
Cardiovascular Innovations and Outcomes Colloquium, Johns Hopkins Helen B. Taussig Heart Center. Baltimore, MD, USA - 2019

Quality of life in adults with congenital heart

Philip Moons
99th Berzelius symposium. The cardiac patients from birth to adulthood. Stockholm, Sweden - 2019

Lack of Knowledge about Contraception and Pregnancy in Adolescent Girls with Congenital Heart Disease – There is Room for

Improvement.

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain. - 2019

Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
SAHM Society of Adolescent and Health Medicine. 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington, USA. - 2019

Life-long cardiac surveillance of patients with severe congenital heart disease: Are we adhering to

guidelines?

Eva Goossens, Aihua Liu, Liming Guo, Sarah Cohen, Judith Therrien, Philip Moons, Ariane Marelli
Journal of Heart and Cardiovascular Medicine - 2019

Urgency for Clarification of Concepts and Definitions related to Discontinuation of Follow-Up Care for Young People with Complex Chronic

Conditions.

Sandra Skogby, Philip Moons, Ewa-Lena Bratt, Bengt Johansson, Eva Goossens
International Scientific Nursing and Midwifery Congress 2019, Leuven, Belgium 4-6 February 2019 - 2019

Thirty-day readmissions in surgical and transcatheter aortic valve replacement: A systematic review and

meta-analysis.

Stein Ove Danielsen, Philip Moons, Irene Sandven, Marit Leegaard, Svein Solheim, Theis Tønnessen, Irene Lie
International journal of cardiology - 2018

Illness Identity in Adults with a Chronic

Illness.

Leen Oris, Koen Luyckx, Jessica Rassart, Liesbet Goubert, Eva Goossens, Silke Apers, Seher Arat, Joris Vandenberghe, René Westhovens, Philip Moons
Journal of clinical psychology in medical settings - 2018

Prospective associations between illness perceptions and health outcomes in patients with systemic lupus erythematosus and systemic sclerosis: a cross-lagged

analysis

Seher Arat, Jessica Rassart, Philip Moons, Joris Vandenberghe, Koen Luyckx, Rene Westhovens
Rheumatology Advances in Practice - 2018

Personality Functioning in Adolescents and Emerging Adults With Type 1

Diabetes.

Jessica Rassart, Leen Oris, Sofie Prikken, Ilse Weets, Philip Moons, Koen Luyckx
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - 2018

SecurAstaP trial: securement with SecurAcath versus StatLock for peripherally inserted central catheters, a randomised open

Godelieve Alice Goossens, Niel Grumiaux, Christel Janssens, Martine Jérôme, Steffen Fieuws, Philip Moons, Marguerite Stas, Geert Maleux
BMJ open - 2018

Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale

(GYPES).

Mariela Acuña Mora, Koen Luyckx, Carina Sparud Lundin, Mariëlle Peeters, AnneLoes van Staa, Jane Sattoe, Ewa-Lena Bratt, Philip Moons
PloS one - 2018

Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart

J. M. Ko, K. S. White, A. H. Kovacs, K. M. Tecson, S. Apers, K. Luyckx, C. Thomet, W. Budts, J. Enomoto, M. A. Sluman, J. K. Wang, J. L. Jackson, P. Khairy, S. C. Cook, R. Subramanyan, L. Alday, K. Eriksen, Mikael Dellborg, Malin Berghammer, B. Johansson, A. S. Mackie, S. Menahem, M. Caruana, G. Veldtman, A. Soufi, S. M. Fernandes, E. Callus, S. Kutty, A. Gandhi, Philip Moons, A. M. Cedars
Am J Cardiol - 2018

Why some people do well and others don't. The role of sense of coherence in disease

adaptation.

Philip Moons, Tone M Norekval
European journal of cardiovascular nursing - 2018

Time to expand risk evaluation systems for cardiac surgery? Looking beyond physiological

parameters.

Pernille F Cromhout, Philip Moons, Lau C Thygesen, Samer Nashef, Sune Damgaard, Selina Kikkenborg Berg
European Journal of Cardiovascular Nursing - 2018

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan

circulation.

Christina E Holbein, Nicholas D Fogleman, Kevin Hommel, Silke Apers, Jessica Rassart, Philip Moons, Koen Luyckx, Maayke A Sluman, Junko Enomoto, Bengt Johansson, Hsiao-Ling Yang, Mikael Dellborg, Raghavan Subramanyan, Jamie L Jackson, Werner Budts, Adrienne H Kovacs, Stacey Morrison, Martha Tomlin, Kathy Gosney, Alexandra Soufi, Katrine Eriksen, Corina Thomet, Malin Berghammer, Luis Alday, Edward Callus, Susan M Fernandes, Maryanne Caruana, Samuel Menahem, Stephen C Cook, Gwen R Rempel, Kamila White, Paul Khairy, Shelby Kutty, Gruschen Veldtman
Congenital heart disease - 2018

Illness Identity: A Novel Predictor for Healthcare Use in Adults With Congenital Heart

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Leen Oris, Silke Apers, Philip Moons
Journal of the American Heart Association - 2018

Self-efficacy as a predictor of patient-reported outcomes in adults with congenital heart

Corina Thomet, Philip Moons, Markus Schwerzmann, Silke Apers, Koen Luyckx, Erwin N Oechslin, Adrienne H Kovacs
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2018

Illness identity in young adults with refractory

epilepsy.

Koen Luyckx, Leen Oris, Koen Raymaekers, Jessica Rassart, Philip Moons, Ludo Verdyck, Teus Mijnster, Ruth E Mark
Epilepsy & behavior : E&B - 2018

Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system

factors.

Philip Moons, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Liesbet Van Bulck, Silke Apers
International journal of cardiology - 2018

APPROACH-IS: Rationale, design and first

results

Philip Moons
Red Cross Hospital, Cape Town, South Africa - 2018

PREMs en PROMs: De stem van de patiënt in de

gezondheidszorg?

Philip Moons
Karakter - 2018

Piercing and tattoos: allowed or

threat?

Philip Moons
AEPC Working Group Neurodevelopment and Psychosocial Care from Fetus to Adult, 7-9 March 2018, Leicester, UK (invited lecture: 8 March) - 2018

Rapid and sustained remission contributes to improved psychosocial outcomes after 1 year of treatment in patients with early rheumatoid arthritis: Data from the Carera

Kristien Van der Elst, Patrick Verschueren, Veerle Stouten, Sophia Pazmino, Diederik De Cock, J Joly, Philip Moons, Rene Westhovens
Annals of the Rheumatic Diseases. 77, suppl. 2, pp.557-558. - 2018

Current status in the care of grown-ups with congenital heart disease in

Europe

Corina Thomet, Philip Moons, Werner Budts, Julie De Backer, Massimo Chessa, Gerhard Diller, Andreas Eicken, Harald Gabriel, P Gallego, A Giamberti, Jolien Roos-Hesselink, Lorna Swan, Gary Webb, Markus Schwerzmann
European Heart Journal. Vol. 39, suppl 1, P5477 - 2018

Exploration of disagreement between the patient’s self-reported limitations and limitations assessed by caregivers in adults with congenital heart

Malin Berghammer, Bengt Johansson, Eva Mattson, Philip Moons, Mikael Dellborg
European Heart Journal. Vol. 39, suppl 1. 2406 - 2018

Healthcare system characteristics and their relationship with patient-reported outcomes in adults with congenital heart disease of 14

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Silke Apers, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Jamie L Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
Circulation. 138 (suppl 1): A14480 - 2018

Illness Identity and its Association with Absence at Work or School in Adults with Congenital Heart

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
Circulation, 138 (suppl 1), A15475 - 2018

Age and quality of life in adults with congenital heart disease worldwide: Evidence for a non-linear

relationship

Philip Moons, Silke Apers, Koen Luyckx, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Eva Goossens
Circulation. 138 (suppl 1): A14623 - 2018

Stepstones: The Swedish Transition Effects Project Supporting Teenagers with chrONic mEdical

conditionS

Philip Moons, Åsa Burström
Symposium Transition Medicine – from childhood to adulthood. Stockholm, Sweden. 23 oktober 2018 - 2018

Adolescents with congenital heart disease own beliefs about their illness: illness perception and potential

correlates

Mariela Acuña Mora, Åsa Burström, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Society of Cardiology Congress - 2018

Patient perspective on mobile health in congenital heart disease: focus on motivation and quality of

life

Philip Moons
European Society of Cardiology Congress 2018, 25-29 August 2018, Munich, Germany - 2018

How to present your data: from posters to

plenaries

Philip Moons
19th Annual SA Heart Congress 2018. Sun City, South Africa - 2018

A life-cycle perspective on congenital heart disease: What happens beyond your

clinic?

Philip Moons
19th Annual SA Heart Congress 2018. Sun City, South Africa - 2018

Transitional care: State of the art and the way

forward

Philip Moons
7th Conference of the German Society for Transition Medicine. Münster, Germany - 2018

Transition in ACHD – Swedish

experience

Philip Moons
7th Conference of the German Society for Transition Medicine. Münster, Germany - 2018

Transfer and transition of young persons with chronic disease: From eminence-based to evidence-based

practice

Philip Moons
Barnveckan, 23-26 April 2018, Västerås, Sweden - 2018

Ready for the transfer to adult care—factors associated with transition readiness in adolescents with congenital heart

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Maria Öjmyr Joelsson, Björn Frenckner, Margret Nisell, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
52nd Annual Meeting of the Association for European Paeditric and Congenital Cardiology. 9-12 May. Athens, Greece. - 2018

Practical challenges regarding in-hospital telemetry monitoring require the development of European practice

standards.

Nina Fålun, Philip Moons, Donna Fitzsimons, Paulus Kirchhof, Eva Swahn, Marco Tubaro, Tone M Norekvål
European heart journal. Acute cardiovascular care - 2018

Successful transfer to adult care: A nationwide study in patients with complex congenital heart lesions in

Sweden

Sandra Skogby, Philip Moons, Bengt Johansson, Christina Christersson, Mikael Dellborg, Shalan Fadl, Eva Fernlund, Katarina Hanseus, Kalliopi Kazamia, Aleksandra Krzynska, Edit Nagy, Annika Rydberg, Jan Sunnegårdh, Ulf Thilen, Per Winberg, Eva Goossens, Ewa-Lena Bratt
Association for European Paediatric and Congenital Cardiology - AEPC 2018, Aten - 2018

Illness identity in youth with type 1 diabetes: A person-centered

Leen Oris, Philip Moons, Liesbeth Goubert, Ilse Weets, Koen Luyckx
European Pediatric Psychology Conference, 20-21 September 2018, Ghent, Belgium - 2018

Adjusting to type 1 diabetes in adolescence and emerging adulthood: The role of

personality

Jessica Rassart, Leen Oris, Sofie Prikken, Ilse Weets, Philip Moons, Koen Luyckx
European Pediatric Psychology Conference, 20-21 September 2018, Ghent, Belgium - 2018

Illness intrusiveness and well-being in mothers and fathers of youth with type 1

diabetes

Sofie Prikken, Leen Oris, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx
European Pediatric Psychology Conference, 20-21 Sept 2018, Ghent, Belgium. - 2018

The relation between the social context and illness identity in adolescents and emerging adults with type 1 diabetes: A three wave longitudinal

Koen Raymaekers, Leen Oris, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
European Pediatric Psychology Conference, 20-21 Sept 2018, Ghent, Belgium. - 2018

The relation between the social context and illness identity in adolescents and emerging adults with type 1 diabetes: A three wave longitudinal

Koen Raymaekers, Leen Oris, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
European Association for Research on Adolescence 2018 Conference, 13-15 Sept 2018, Ghent, Belgium - 2018

Personality functioning in adolescents and emerging adults with type 1 diabetes: A longitudinal

Jessica Rassart, Leen Oris, Sofie Prikken, Ilse Weets, Philip Moons, Koen Luyckx
32nd annual conference of the European Health Psychology, 23 August 2018, Galway, Ireland. - 2018

Illness intrusiveness and well-being in mothers and fathers of youth with type 1

diabetes

Sofie Prikken, Leen Oris, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx
32nd annual conference of the European Health Psychology, 23 August 2018, Galway, Ireland - 2018

Betydelsen av Empowerment hos unga med långvariga sjukdomstillstånd vid övergången till vuxenlivet och överföring till vuxensjukvården- ett

doktorandprojekt

Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Sjuksköterskedagarna - 2018

Unraveling the role of healthcare system factors for continuing care of adolescents with congenital or rheumatic heart disease: Rationale and methods of the international

Adole7C-project

Ewa-Lena Bratt, Liesl Zühlke, Bongani Mayosi, Sandra Skogby, Alexia Joachim, Samkelo Jiyana, Thabani Msomi, Lungile Pepeta, Philip Moons
19th Annual South African Heart Association Congress. 4-7 Okt 2018. Suncity, South Africa. - 2018

Eating disorder symptomatology and identity formation in adolescence: A cross-lagged longitudinal

Margaux Verschueren, Laurence Claes, Annabel Bogaerts, Nina Palmeroni, Amarendra Gandhi, Philip Moons, Koen Luyckx
Frontiers in Psychology - 2018

Borttappad i

vården

Sandra Skogby, Philip Moons, Ewa-Lena Bratt, Bengt Johansson, Eva Goossens
Nationella utbildningsdagar för vårdprofessioner inom kardiologi VIC - Medfödda hjärtfel "Vårdens framgångar ger nya möjligheter och utmaningar" - 2018

Modifiable correlates of illness perceptions in adults with chronic somatic conditions: A systematic

review.

Seher Arat, Diederik De Cock, Philip Moons, Joris Vandenberghe, René Westhovens
Research in nursing & health - 2018

Psychosocial issues in Adult Congenital Heart

Philip Moons, Koen Luyckx
Diagnosis and management of Adult Congenital Heart Disease (3rd ed). Michael Gatzoulis, Gary Webb, Piers Daubeney (red.) - 2018

Scoping the field of transfer and transition in young persons with cardiovascular

conditions

Markus Saarijärvi, Mariela Acuña Mora, Ewa-Lena Bratt, Carina Sparud Lundin, Philip Moons, Eva Goossens
EuroHeartCare 2018, Dublin - 2018

Advanced Practice Nursing and

Midwifery

Philip Moons
2018

Concepts and theory building in nursing and

midwifery

Philip Moons
2018

Mapping the field: scoping reviews as a method to identify gaps in nursing

Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons, Eva Goossens
Nordic Conference of Nursing Research 2018 - 2018

Illness representations of systemic lupus erythematosus and systemic sclerosis: a comparison of patients, their rheumatologists and their general

practitioners.

Seher Arat, Jan L Lenaerts, Ellen De Langhe, Patrick Verschueren, Philip Moons, Joris Vandenberghe, Veerle Taelman, Rene Westhovens
Lupus science & medicine - 2017

Landmark lecture in nursing: a life-cycle perspective on CHD: What happens beyond your

clinic?

Philip Moons
Cardiology in the young - 2017

The Role of Peers for Diabetes Management in Adolescents and Emerging Adults With Type 1 Diabetes: A Longitudinal

Koen Raymaekers, Leen Oris, Sofie Prikken, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
Diabetes care - 2017

Illness perceptions in adult congenital heart disease: A multi-center international

Jessica Rassart, Silke Apers, Adrienne H Kovacs, Philip Moons, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Gwen R Rempel, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila S White, Edward Callus, Shelby Kutty, Koen Luyckx
International journal of cardiology - 2017

Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS

Substudy.

Maryanne Caruana, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Maayke Sluman, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Alexandra Soufi, Edward Callus, Philip Moons, Victor Grech
Pediatric cardiology - 2017

Attitudes of nurses towards family involvement in the care for patients with cardiovascular

diseases.

Mla Luttik, E Goossens, S Ågren, T Jaarsma, J Mårtensson, D R Thompson, Philip Moons, A Strömberg
European Journal of Cardiovascular Nursing - 2017

High readmission rates and mental distress after infective endocarditis - Results from the national population-based CopenHeart IE

survey.

Trine Bernholdt Rasmussen, Ann-Dorthe Zwisler, Lau Caspar Thygesen, Henning Bundgaard, Philip Moons, Selina Kikkenborg Berg
International journal of cardiology - 2017

Diverging illness perceptions between physicians about patients with systemic lupus erythematosus and systemic sclerosis: a vignette-based

Seher Arat, Philip Moons, Joris Vandenberghe, Jan L Lenaerts, Kurt de Vlam, René Westhovens
Rheumatology international - 2017

SheppHeartCABG trial-comprehensive early rehabilitation after coronary artery bypass grafting: a protocol for a randomised clinical

Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International

Ida Elisabeth Højskov, Philip Moons, Niels Viggo Hansen, Søren La Cour, Peter Skov Olsen, Christian Gluud, Per Winkel, Jane Lindschou, Lau Caspar Thygesen, Ingrid Egerod, Selina Kikkenborg Berg
BMJ open - 2017

Hopelessness among adults with congenital heart disease: Cause for despair or

hope?

Bahareh Eslami, Adrienne H Kovacs, Philip Moons, Kyomars Abbasi, Jamie L Jackson
International journal of cardiology - 2017

Identity Processes and Statuses in Patients with and without Eating

Disorders.

Margaux Verschueren, Koen Luyckx, Erin A Kaufman, Maarten Vansteenkiste, Philip Moons, Ellen Sleuwaegen, Ann Berens, Katrien Schoevaerts, Laurence Claes
European eating disorders review : the journal of the Eating Disorders Association - 2017

Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES

Malin Berghammer, Eva Mattsson, Bengt Johansson, Philip Moons, Mikael Dellborg
Cardiology in the young - 2017

Validity, reliability and responsiveness of the Body Image Quality of Life Inventory in patients treated for infective

endocarditis.

Trine Bernholdt Rasmussen, Hanne Konradsen, Jane Dixon, Philip Moons, Ann-Dorthe Zwisler, Selina Kikkenborg Berg
Scandinavian journal of caring sciences - 2017

project)

Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
BMJ Open - 2017

The STEPSTONES project-Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to

adulthood

Ewa-Lena Bratt, Carina Sparud Lundin, Mariela Acuña Mora, Philip Moons
ISTAR Konferens - 2017

Quality of life in Maltese adults with congenital heart disease: a second look – An APPROACH-IS

substudy

Maryanne Caruana, Philip Moons, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Maayke Sluman, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Alexandra Soufi, Edward Callus, Victor Grech, Silke Apers
International Cardiovascular Forum Journal - 2017

Patient-reported outcomes are associated with physical activity level in adults with congenital heart

Annika Bay, Mikael Dellborg, Malin Berghammer, Camila Sandberg, Eva Mattson, G Engström, Philip Moons, Bengt Johansson
Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden (26-28 April 2017) - 2017

Ensuring high quality life-long care: Holding providers

responsible

Philip Moons
27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA (invited lecture: 15 September 2017) - 2017

Illness identity as predictor of healthcare use in adults with congenital heart

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
European Heart Journal. 38 (Suppl. 1), ehx502.P1525 - 2017

Missed appointments for outpatient visits as predictors for care gaps in adults with congenital heart

Eva Goossens, Kristien Van Deyk, Werner Budts, Philip Moons
European Heart Journal. 38 (Suppl. 1), ehx502.P2104 - 2017

Education is the main predictor for successful employment in adults with congenital heart disease

worldwide

Maayke A Sluman, Silke Apers, JK Sluiter, Philip Moons, Koen Luyckx, Adrienne H Kovacs, Berto J Bouma, Barbara JM Mulder
European Heart Journal. 38 (Suppl. 1), ehx493.P6313 - 2017

Prediction of 10-y mortality in adults with congenital heart disease using disease severity and functional

indices

Fouke Ombelet, Eva Goossens, Silke Apers, Werner Budts, Marc Gewillig, Philip Moons
European Heart Journal. 38 (Suppl.1), ehx493.P6316 - 2017

The influence of peers on diabetes management in adolescents and emerging adults: A longitudinal

Koen Raymaekers, Leen Oris, Sofie Prikken, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
31st Conference of the European Health Psychology Society, 29 August-2 September, Padua, Italy - 2017

Illness perceptions in adult congenital heart disease: a multi-center international

Jessica Rassart, Silke Apers, Adrienne H Kovacs, Philip Moons, Koen Luyckx
31st Conference of the European Health Psychology Society, 29 August-2 September, Padua, Italy - 2017

Differences in Patient-Reported Outcomes are partly explained by religion in adults with congenital heart disease: An APPROACH-IS

substudy

Philip Moons, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, R Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Susan M Fernandes, Kamilla White, Edward Callus, Shelby Kutty, Silke Apers
27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA - 2017

Illness perceptions and health behaviors in patients with Fontan

circulation

Christina E Holbein, Kevin Hommel, Silke Apers, Philip Moons, Gruschen Veldtman
27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA - 2017

Level of empowerment and its correlates in young persons with congenital heart

Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katerina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Heart Journal. 38 (Suppl.1), ehx502.P1517 - 2017

Artsen hebben uiteenlopende percepties over patiënten met systeemlupus en

systeemsclerose

Seher Arat, Philip Moons, Joris Vandenberghe, JL Lenaerts, Kurt de Vlam, Rene Westhovens
Nederlands Tijdschrift voor Reumatologie - 2017

24/7 telephone support after discharge for surgical aortic valve replacement as a potential lifesaving intervention -a clinical case from the AVRre

Stein O Danielsen, Philip Moons, T Tonnessen, S Solheim, Marit Leegaard, Irene Lie
European Journal of Cardiovascular Nursing. Vol 16, Issue 1_suppl. - 2017

Empowerment in congenital heart disease: psychometric properties of the Gothenburg Young Persons Empowerment Scale

(GYPES)

Mariela Acuña Mora, Carina Sparud Lundin, Koen Luyckx, Ewa-Lena Bratt, Philip Moons
European Journal of Cardiovascular Nursing. Vol 16, Issue 1_suppl. - 2017

Advanced Practice Nursing and

Midwifery

Philip Moons
2017

Concepten en theorievorming in de verpleeg- en

vroedkunde

Philip Moons
2017

Regional variation in quality of life in patients with a Fontan circulation: A multinational

perspective

Nicholas D. Fogleman, Silke Apers, Philip Moons, Stacey Morrison, Samuel G. Wittekind, Martha Tomlin, Kathy Gosney, Maayke A. Sluman, Bengt Johansson, Junko Enomoto, Mikael Dellborg, Chun Wei Lu, Raghavan Subramanyan, Koen Luyckx, Werner Budts, Jamie Jackson, Adrienne Kovacs, Alexandra Soufi, Katrine Eriksen, Corina Thomet, Malin Berghammer, Edward Callus, Susan M. Fernandes, Maryanne Caruana, Stephen C. Cook, Andrew S. Mackie, Kamila S. White, Paul Khairy, Shelby Kutty, Gruschen Veldtman
American Heart Journal - 2017

Diabetes in de adolescentie en de jongvolwassenheid: Een familiaal perspectief met aandacht voor het functioneren van

ouders

Sofie Prikken, Leen Oris, Lies Missotten, Jessica Rassart, Ilse Weets, Philip Moons, Liesbeth Goubert, Koen Luyckx
Event Diabetes Liga 75 Jaar, Antwerp, Belgium (7 October) - 2017

De rol van vrienden in de omgang met type 1

diabetes

Koen Raymaekers, Leen Oris, Sofie Prikken, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
Event Diabetes Liga 75 Jaar, Antwerp, Belgium (7 October) - 2017

Person-centered care and cardiac

rehabilitation

Philip Moons
Copenheart closing event, Copenhagen, Denmark (invited lecture: 3 November) - 2017

Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based

survey.

Carina Sparud Lundin, Malin Berghammer, Philip Moons, Ewa-Lena Bratt
BMC health services research - 2017

Quality of life in pediatric and congenital

cardiology

Philip Moons
Congrès Médico-chirurgical de la FCPC, 27-29 September 2017, Montpellier, France (invited lecture: 28 September 2017) - 2017

Readiness for transfer in adolescents with congenital heart

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, M Ojmyr-Joelsson, M Nisell, B Frenckner, Philip Moons, Ewa-Lena Bratt
Abstract Book of World Congress on Pediatric Cardiology and Cardiac Surgery 2017, p 806 - 2017

Global ACHD quality of life

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017

Location matters: pediatric versus adult

hospitals

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017

Bundles and pathways: What is the

evidence?

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017

Landmark lecture: A life-cycle perspective on congenital heart disease: What happens beyond your

clinic?

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017

Determining the impact of 24/7 phone support on hospital readmissions after aortic valve replacement surgery (the AVRre study): study protocol for a randomised controlled

Irene Lie, Stein Ove Danielsen, Theis Tønnessen, Svein Solheim, Marit Leegaard, Leiv Sandvik, Torbjørn Wisløff, Jonny Vangen, Tor Henning Røsstad, Philip Moons
Trials - 2017

Patient reported outcomes are associated with physical activity level in adults with congenital heart

Annika Bay, Mikael Dellborg, Malin Berghammer, Camilla Sandberg, Gunnar Engström, Philip Moons, Bengt Johansson
International journal of cardiology - 2017

Using intervention mapping in developing complex nursing interventions- the STEPSTONES transition program for adolescents with chronic

conditions

Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt
The Future Direction of European Nursing nd Nursing Research - 2017

Identity Statuses throughout Adolescence and Emerging Adulthood: A Large-Scale Study into Gender, Age, and Contextual

Differences

Margaux Verschueren, Jessica Rassart, Laurence Claes, Philip Moons, Koen Luyckx
Psychologica belgica - 2017

Methods and obstacles in planning international research. The case of

Philip Moons
8th National Conference Adult Congenital Heart Association. 2-3 June 2017. Orlando FL, USA - 2017

What is evidence-based practice? (And what is it

not?)

Philip Moons
EuroHeartCare 2017. Jonköping, Sweden (invited lecture: 20 May 2017) - 2017

Research on transitional care: State of an art in

transition

Philip Moons
29th European Academy of Childhood Disability preconference. Amsterdam, the Netherlands (invited lecture: 17 May 2017) - 2017

Identity processes and statuses in patients with eating

disorders.

Margaux Verschueren, Koen Luyckx, E Kaufman, M Vansteenkiste, Philip Moons, E Sleuwaegen, A Berens, K Schoevaerts, Laurence Claes
24th International Society for Research on Identity, 18-21 May 2017 Groningen, the Netherlands - 2017

Illness identity in adolescents and emerging adults with type 1

Leen Oris, Philip Moons, Liesbeth Goubert, Ilse Weets, Koen Luyckx
24th International Society for Research on Identity, 18-21 May 2017 Groningen, the Netherlands. - 2017

The patients’ view compared with the caregivers assessment – alternative

truths?

Malin Berghammer, Bengt Johansson, Eva Mattson, Philip Moons, Mikael Dellborg
Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden (26-28 April 2017) - 2017

Contraceptive Practices of Women With Complex Congenital Heart

Pamela D Miner, Mary M Canobbio, Dorothy D Pearson, Mary Schlater, Yvonne Balon, Kathryn J Junge, Ami Bhatt, Deena Barber, Michelle J Nickolaus, Adrienne H Kovacs, Philip Moons, Kate Shaw, Susan M Fernandes
The American journal of cardiology - 2017

Piercing and tattoos: A threat for our

patients?

Philip Moons
EuroGUCH 2017. Lausanne Switzerland - 2017

Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare

providers.

Chi-Wen Chen, Wen-Jen Su, Yueh-Tao Chiang, Ying-Mei Shu, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2017

Body modification: Are tattoos and piercings safe for patients with

CHD?

Philip Moons
51st AEPC Annual Meeting. Lyon, France (29 March - 1 April) - 2017

Transfer and transition of young persons with chronic disease: What is it, and what’s the

problem?

Philip Moons
Forskningsdagen Sahlgrenska Akademin och Sahlgrenska Universitetssjukhuset, Gothenburg, Sweden (invited lecture: 2 March) - 2017

What type of research methods knowledge is needed in relation to complex intervention

research?

Philip Moons
Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden (invited lecture: 1 March) - 2017

Development and persistence of depressive symptoms in adolescents with

CHD.

Koen Luyckx, Jessica Rassart, Eva Goossens, Silke Apers, Leen Oris, Philip Moons
Cardiology in the young - 2016

The Science Committee of the Council of Cardiovascular Nursing and Allied Professions: Moving

forward.

Barbro Kjellström, Geraldine Lee, Rani Khatib, Romy Mahrer-Imhof, Philip Moons, Samar Noureddine, Sharon O'Donnell, Anna Strömberg, Margrét H Svavarsdóttir, Tiny Jaarsma
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2016

Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping

Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Systematic Reviews - 2016

Patients' Perceptions of their Rheumatic Condition: Why Does it Matter and How Can Healthcare Professionals Influence or Deal with these

Perceptions?

Seher Arat, Joris Vandenberghe, Philip Moons, René Westhovens
Musculoskeletal care - 2016

Recall of patients discharged from follow-up after repair of isolated congenital shunt

lesions.

Charlien Gabriels, Alexander Van De Bruaene, Frederik Helsen, Philip Moons, Kristien Van Deyk, Els Troost, Bart Meyns, Marc Gewillig, Werner Budts
International journal of cardiology - 2016

Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific

Characteristics.

Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Anitra W Romfh, Kamila White, Edward Callus, Shelby Kutty, Steffen Fieuws, Philip Moons
Journal of the American College of Cardiology - 2016

Exploring the relationship between disease-related knowledge and health risk behaviours in young people with congenital heart

Astrid Janssens, Eva Goossens, Koen Luyckx, Werner Budts, Marc Gewillig, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2016

Illness Identity in Adolescents and Emerging Adults With Type 1 Diabetes: Introducing the Illness Identity

Questionnaire.

Leen Oris, Jessica Rassart, Sofie Prikken, Margaux Verschueren, Liesbet Goubert, Philip Moons, Cynthia A Berg, Ilse Weets, Koen Luyckx
Diabetes care - 2016

Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to

Adulthood.

Eva Goossens, Lore Bovijn, Marc Gewillig, Werner Budts, Philip Moons
Pediatrics - 2016

Bringing Antonovsky's salutogenic theory to life: A qualitative inquiry into the experiences of young people with congenital heart

Silke Apers, Jessica Rassart, Koen Luyckx, Leen Oris, Eva Goossens, Werner Budts, Philip Moons
International journal of qualitative studies on health and well-being - 2016

Prioritized outcomes to evaluate the effectiveness of atrial fibrillation disease management: A systematic review and Delphi

Dana Berti, Xavier Van Vlasselaer, Philip Moons, Hein Heidbuchel
International journal of cardiology - 2016

The clinical impact of a brief transition programme for young people with juvenile idiopathic arthritis: results of the DON'T RETARD

project.

Deborah Hilderson, Philip Moons, Kristien Van der Elst, Koen Luyckx, Carine Wouters, René Westhovens
Rheumatology (Oxford, England) - 2016

Serious Games for improving knowledge and self-management in young people with chronic conditions: A systematic review and

meta-analysis.

Nathalie Charlier, Nele Zupancic, Steffen Fieuws, Kris Denhaerynck, Bieke Zaman, Philip Moons
Journal of the American Medical Informatics Association : JAMIA - 2016

A Big Five Personality Typology in Adolescents with Congenital Heart Disease: Prospective Associations with Psychosocial Functioning and Perceived

Health.

Jessica Rassart, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
International journal of behavioral medicine - 2016

Change and stability in depressive symptoms in young adults with type 1

Are illness perception and coping style associated with the delay between symptom onset and the first general practitioner consultation in early rheumatoid arthritis management? An exploratory study within the CareRA

Leen Oris, Koen Luyckx, Jessica Rassart, Eveline Goethals, Patricia Bijttebier, Liesbet Goubert, Philip Moons, Ilse Weets
Diabetes research and clinical practice - 2016

Instrument translation and initial psychometric evaluation of the Danish Body Image Quality of Life

Inventory.

Trine Bernholdt Rasmussen, Selina Kikkenborg Berg, Jane Dixon, Philip Moons, Hanne Konradsen
Scandinavian journal of caring sciences - 2016

Diagnostic accuracy of the Catheter Injection and Aspiration (CINAS) classification for assessing the function of totally implantable venous access

devices.

G A Goossens, Y De Waele, M Jérôme, S Fieuws, C Janssens, M Stas, Philip Moons
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer - 2016

K Van der Elst, D De Cock, E Vecoven, S Arat, S Meyfroidt, J Joly, Philip Moons, P Verschueren, R Westhovens
Scandinavian journal of rheumatology - 2016

Development and preliminary evaluation of the validity and reliability of a revised illness perception questionnaire for healthcare

professionals.

Seher Arat, Anke Van den Zegel, Maity Van Rillaer, Philip Moons, Joris Vandenberghe, Ellen De Langhe, René Westhovens
BMC nursing - 2016

Illness intrusiveness in parents and glycaemic control in youth with type 1 diabetes: Intergenerational

processes

Sofie Prikken, Leen Oris, Jessica Rassart, Lies Missotten, Ilse Weets, Philip Moons, Koen Luyckx
Abstract book of the European Health Psychology Society and British Psychology Society Division of Health Psychology Conference 2016 – Aberdeen, Scotland: 854 - 2016

Long-term cardiac follow-up with severe congenital heart disease: Are care gaps associated with an increased probability of

mortality

Eva Goossens, A Liu, L Guo, Sarah Cohen, Judith Therrien, Philip Moons, Ariane J Marelli
Circulation - 2016

Patient-reported health and its correlates in adults with congenital heart disease from 15

Philip Moons, Adrienne Kovacs, Koen Luyckx, Silke Apers
Circulation - 2016

Illness identity in youth type 1 diabetes: A person-centered approach

(P333)

Leen Oris, Philip Moons, Liesbeth Goubert, Ilse Weets, Koen Luyckx
Pediatric Diabetes - 2016

Identity formation in youth with type 1 diabetes

(P197)

Margaux Verschueren, Leen Oris, Laurence Claes, Philip Moons, Ilse Weets, Koen Luyckx
Pediatric Diabetes - 2016

Illness intrusiveness in parents and glycemic control in youth with type 1 diabetes: Intergenerational processes

(P051)

Sofie Prikken, Leen Oris, Ilse Weets, Philip Moons, Koen Luyckx
Pediatric Diabetes - 2016

A triadic approach towards illness perceptions in youth with type 1 diabetes and their parents: Associations with patient and parent functioning

(P166)

Sofie Prikken, Leen Oris, Ilse Weets, Philip Moons, Koen Luyckx
Pediatric Diabetes - 2016

Hybrid experimental design: A suitable design to tackle contamination of control

groups

Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Nordic Conference in Nursing Research: Methods and Networks for the Future, June 15-17, Stockholm - 2016

Exploring physicians’ perceptions of illness in patients with systemic lupus erythematosus and systemic sclerosis: A vignette-based

Seher Arat, Philip Moons, Joris Vandenberghe, Jan Lenaerts, Kurt De Vlam, Rene Westhovens
Annals of the Rheumatic Diseases - 2016

Patients with early theumatoid arthritis treated with remission induction treat-to-target regimens report important early and lasting health improvement: Results from the CareRA

Kristien Vander Elst, Diederik De Cock, V Stouten, J Joly, Philip Moons, Patrick Verschueren, Rene Westhovens
Annals of the Rheumatic Diseases - 2016

Sense of coherence does not moderate the relationship between the perceived impact of stress on health and self-rated health in adults with congenital heart

Silke Apers, Lien Sevenants, Werner Budts, Koen Luyckx, Philip Moons
European Journal of Cardiovascular Nursing - 2016

Patients with early rheumatoid arthritis treated with remission induction treat-to-target regimens report important early and lasting health improvement: results from the CareRA

Kristien Van der Elst, De Cock Diederik, J Joly, v Stouten, Philip Moons, Patrick Verschueren, Rene Westhovens
Proceedings of the 20th Belgian Congress on Rheumatology 2016. 28 – 30 September 2016, Gosselies. - 2016

Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-CHD

Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016

Systemic lupus erythematosus and systemic sclerosis: Differences in perceptions between patients, their rheumatologists and their general

practitioners

Seher Arat, Jan Lenaerts, Ellen De Langhe, Patrick Verschueren, V Taelman, Joris Vandenberghe, Philip Moons, Rene Westhovens
Proceedings of the 20th Belgian Congress on Rheumatology 2016 - 2016

Exploring physicians’ perceptions of illness in patients with systemic lupus erythematosus and systemic sclerosis: A vignette-based

Seher Arat, Philip Moons, Joris Vandenberghe, Jan Lenaerts, Kurt De Vlam, Rene Westhovens
Proceedings of the 20th Belgian Congress on Rheumatology 2016 - 2016

Exploring physicians’ perceptions of illness in patients with systemic lupus erythematosus and systemic sclerosis: A vignette-based

Seher Arat, Philip Moons, Joris Vandenberghe, Jan Lenaerts, Kurt De Vlam, Rene Westhovens
Abstract Book Fifth ARPH (Association for researchers in psychology and health) conference 2016: Maastricht, Netherlands - 2016

Cigarettes, alcohol, diet and exercise: Lifestyle choices and outcomes in congenital heart disease

patients

Philip Moons
Scientific Sessions of the American Heart Association. New Orleans LA, USA, 11-15 November - 2016

Transfer and transition: From eminence-based to evidence-based

practice

Philip Moons
Pentalfa: Interactive Postgraduate Course, Leuven Belgium - 8 December 2016 - 2016

Congenital heart disease and

adolescence

Markus Schwerzmann, Corina Thomet, Philip Moons
2016

Unraveling patient-preferred health and treatment outcomes in early rheumatoid arthritis: A longitudinal qualitative

Kristien Van der Elst, Sabrina Meyfroidt, Diederik De Cock, An De Groef, Els Binnard, Philip Moons, Patrick Verschueren, René Westhovens
Arthritis care & research - 2016

Transfer and transition: Where to go from

here?

Philip Moons
Summer course on children and adolescents with chronic illness. 30 August - 2 Sept 2016. Lausanne, Switzerland - 2016

Health Care Assistants in Home Nursing: The Holy Grail or the Emperor’s New Clothes? A Qualitative

Study

K. De Vliegher, A. Declercq, B. Aertgeerts, Philip Moons
Home Health Care Management & Practice - 2016

Coping with type 1 diabetes through emerging adulthood: Longitudinal associations with perceived control and haemoglobin

A1c.

Jessica Rassart, Koen Luyckx, Leen Oris, Eveline Goethals, Philip Moons, Ilse Weets
Psychology & health - 2016

Evolution of advanced practice roles around the

world

Philip Moons
EuroHeartCare 2016. 16 April 2016, Athens, Greece - 2016

Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-ConHD

Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
Cardiology in the Young. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology, Rome, Italy, June 1–4, 2016. - 2016

Big Five personality types in adolescents with congenital heart disease: Prospective associations with psychosocial functioning and perceived

health

Jessica Rassart, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
AEPC Psychosocial Meeting. 16-18 March 2016, Rotterdam, the Netherlands - 2016

Monocentric prospective study of patients dismissed from follow-up after closure of isolated congenital shunt

lesions

C. Gabriels, A. Van De Bruaene, F. Helsen, Philip Moons, K. Van Deyk, E. Troost, W. Budts
Acta Cardiologica - 2016

Parenting styles and perceived health in adolescents with congenital heart

Philip Moons, Koen Luyckx
50th AEPC Annual Meeting. June 1 - June 4. Rome, Italy - 2016

Effecten van Verpleegkundig Specialisten: Wat werkt voor wie? [Effects of Nurse Specialists: What works for

whom?]

Philip Moons
Symposium Verpleegkundig Specialisten: Durven investeren. 18 April 2016, Brussels, Belgium - 2016

Grant applications: What works? What

doesn’t?

Philip Moons
EuroHeartCare 2016 preconference Masterclass, 14 April 2016, Athens, Greece - 2016

Parental and peer support in adolescents with a chronic condition: a typological approach and developmental

implications.

Leen Oris, Inge Seiffge-Krenke, Philip Moons, Liesbet Goubert, Jessica Rassart, Eva Goossens, Koen Luyckx
Journal of behavioral medicine - 2016

Transfer and transition: State of an art in

progress

Philip Moons
Danish Organisation of Adolescent Health. 4 March 2016. Copenhagen, Denmark - 2016

Illness identity in individuals with a chronic

illness

L Oris, Philip Moons, L Goubert, J Rassart, E Goossens, S Apers, S Prikken, M Verschueren, I Weets, K Luyckx
Annual Meeting and Scientific Sessions of the Society of Behavioral Medicine. 30 March-2 April 2016, Washington, DC, USA. - 2016

“The catheter is occluded?” The Catheter Injection and Aspiration (CINAS) Classification answers your question

accurately!

Godelieve A Goossens, Yannick De Waele, Martine Jérôme, Steffen Fieuws, Christel Janssens, Marguerite Stas, Philip Moons
The Journal of the Association for Vascular Access. 20(4), 238–239 - 2015

Early physical training and psycho-educational intervention for patients undergoing coronary artery bypass grafting. The SheppHeart randomized 2 × 2 factorial clinical pilot

Ida E Højskov, Philip Moons, Niels V Hansen, Helle Greve, Dorte Bæk Olsen, Søren La Cour, Christian Glud, Per Winkel, Jane Lindschou, Ingrid Egerod, Anne Vinggaard Christensen, Selina Kikkenborg Berg
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2015

Determinants of illness perceptions in adults with acute or chronic somatic diseases: a systematic

S Arat, D De Cock, Philip Moons, J Vandenberghe, R Westhovens
Association for Researchers in Psychology and Health. 5-6 February 2015. Ghent, Belgium. - 2015

Quality of life in adults with congenital heart disease worldwide: A multilevel study in 15

Silke Apers, AH Kovacs, Koen Luyckx, Philip Moons
Circulation - 2015

Caring for homecare: A mixed methods analysis of the current and future role of home

nurses

Kristel De Vliegher, Anja Declercq, Bert Aertgeerts, Philip Moons
Archives of Public Health - 2015

Uncertainties in insurances for adults with congenital heart

MA Sluman, Silke Apers, BJ Bouma, Joost van Melle, CH Peels, MC Post, WM Waskowsky, Philip Moons, BJM Mulder
European Heart Journal - 2015

Adjusting to congenital heart disease in adolescence: The role of patients’ personality and

self

Jessica Rassart, Koen Luyckx, Philip Moons
Clinical psychology and congenital heart disease. Edward Callus; Emilia Quadri (eds.) - 2015

Health care needs in adolescents into young adults with congenital heart disease: A Delphi survey of patients, parents and healthcare

providers

Chi-Wen Chen, WJ Su, YT Chiang, YM Shu, Philip Moons
European Heart Journal - 2015

Impact of SMS reminder system on missed appointments in an outpatient clinic for adults with congenital heart

Kristien Van Deyk, Eva Goossens, Sanne Strijbos, Werner Budts, Philip Moons
Abstract book 25th International Symposium on Adult Congenital Heart Disease ‘Transforming ACHD Care’. 3-6 June 2015, Toronto, Canada. - 2015

Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to

Adulthood

Ewa-Lena Bratt, Koen Luyckx, Eva Goossens, Werner Budts, Philip Moons
Journal of Adolescent Health - 2015

Is Illness Perception and Coping Associated with the Patient-related Treatment Delay in Early Rheumatoid Arthritis? An Explorative Study within the CareRA

K Van der Elst, D De Cock, E Vecoven, S Arat, S Meyfroidt, J Joly, Philip Moons, P Verschueren, R Westhovens
European Congress of Rheumatology EULAR. 10-13 June 2015. Rome, Italy. - 2015

Adjusting to congenital heart disease in adolescence: The role of patients’ personality and

self

J Rassart, K Luyckx, Philip Moons
Association for Researchers in Psychology and Health. 5-6 February 2015. Ghent, Belgium. - 2015

Parental and Peer Support in Adolescents With a Chronic Illness: a typological approach and developmental

implications

L Oris, K Luyckx, I Seiffge-Krenke, J Rassart, E Goethals, E Goossens, Philip Moons
Association for Researchers in Psychology and Health. 5-6 February 2015. Ghent, Belgium. - 2015

Preliminary validation of an illness perception questionnaire for healthcare

professionals

S Arat, A Van den Zegel, Philip Moons, J Vandenberghe, R Westhovens
British Society for Rheumatology Conference. 28-30 April 2015. Manchester, United Kingdom. - 2015

Ziekte-identiteit bij adolescenten en opkomende volwassenen met een chronische ziekte [Illness identity in adolescents and emerging adults with chronic

illness].

L Oris, I Weets, Philip Moons, K Luyckx
Vlaams Congres Kinder- en Jeugdpsychiatrie en –psychotherapie. 17-18 september 2015, Brussels, Belgium. - 2015

The 24-h recall instrument for home nursing to measure the activity profile of home nurses: development and psychometric

testing.

Kristel De Vliegher, Bert Aertgeerts, Anja Declercq, Christiane Gosset, Isabelle Heyden, Michel Van Geert, Philip Moons
Primary health care research & development - 2015

Exploring the activity profile of health care assistants and nurses in home

nursing.

Kristel De Vliegher, Bert Aertgeerts, Anja Declercq, Philip Moons
British journal of community nursing - 2015

Clinical

Assessment

Philip Moons, Marc Sabbe, Werner Budts, Lieven Dupont, Martin Hiele, Erik Van Limbergen, Marie-Anne Morren, Frank Luyten, Maarten Schrooten, Guido Van Driel, Werner Spileers, Greet Hens
2015

The impact of new technologies on quality of life for the adult with tetralogy of

Fallot

Philip Moons
Scientific Sessions of the American Heart Association. Orlando FL, USA (8 Nov, 2015). - 2015

Quality of life in adults with congenital heart

Silke Apers, Koen Luyckx, Philip Moons
Clinical psychology and congenital heart disease - 2015

Psychosocial Functioning and Glycemic Control in Emerging Adults With Type 1 Diabetes: A 5-Year Follow-Up

Jessica Rassart, Koen Luyckx, Cynthia A Berg, Patricia Bijttebier, Philip Moons, Ilse Weets
Health psychology : official journal of the Division of Health Psychology, American Psychological Association - 2015

Management and treatment of congenital heart disease in the 21st

century

Eva Goossens, Philip Moons, Werner Budts
EuroHeartCare 2015. Dubrovnik, Croatia (invited lecture: 15 June 2015). - 2015

Implementation of the American College of Cardiology/American Heart Association 2008 Guidelines for the Management of Adults With Congenital Heart

Eva Goossens, Susan M Fernandes, Michael J Landzberg, Philip Moons
American Journal of Cardiology - 2015

Quality of life in congenital heart

Philip Moons
National Foundation for Research in Pediatric Cardiology. Leuven, Belgium. 17 October 2015 - 2015

Closing the gap: The role of research in professional

education

Philip Moons
Research days, University College Metropole, Copenhagen, Denmark (23 Sept 2015) - 2015

Forty Years of Quality-of-Life Research in Congenital Heart Disease: Temporal Trends in Conceptual and Methodological

Rigor

Ewa-Lena Bratt, Philip Moons
International Journal of Cardiology - 2015

Quality of life in adult congenital heart disease: From research to

practice

Philip Moons
25th International Symposium on Adult Congenital Heart Disease. June 3 – 6, 2015. Toronto, Canada - 2015

Conceptual and Methodological Rigor in Quality of Life Research in Congenital Heart

Ewa-Lena Bratt, Philip Moons
49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology 20-23 May 2015. - 2015

What is quality of life and how to measure

it?

Philip Moons
49th AEPC Annual Meeting. Prague, Czech Republic (20-23 May, 2015) - 2015

The Psycho-social issues of

transition.

Philip Moons
49th AEPC Annual Meeting. Prague, Czech Republic (20-23 May, 2015) - 2015

Quality of life in congenital heart disease

worldwide.

Silke Apers, Koen Luyckx, Philip Moons
49th AEPC Annual Meeting. Prague, Czech Republic (20-23 May, 2015) - 2015

Multi-Center ACHD research – Challenges and successes:

Philip Moons, Adrienne Kovacs, Koen Luyckx, Silke Apers
25th International Symposium on Adult Congenital Heart Disease. June 3-6, 2015, Toronto, Canada. - 2015

Defining quality of life in congenital heart

Philip Moons
18th Annual update on pediatric and congenital cardiovascular disease. February 11-15, 2015, Scottsdale, Arizona, USA - 2015

Why is transfer to adult care so

hard?

Philip Moons, Eva Goossens, Ewa-Lena Bratt
18th Annual Update on Pediatric and Congenital Cardiovascular Disease - Challenges and Dilemmas. Feb 11-15, 2015. Scottsdale, ARizona, US. - 2015

Scrutinizing Patient-Reported Health Status in Young People with Congenital Heart

Ewa-Lena Bratt, Koen Luyckx, Eva Goossens, Werner Budts, Philip Moons
18th Annual Update on Pediatric and Congenital Cardiovascular Disease - Challenges and Dilemmas. Feb 11-15, 2015. Scottsdale, Arizona, US. - 2015

How can we improve patient knowledge in adult

patients?

Philip Moons, Eva Goossens, Ewa-Lena Bratt
49th AEPC Annual Meeting. Prague, Czech Republic (20-23 May, 2015) - 2015

Effectiveness of Structured Education on Knowledge and Health Behaviors in Patients with Congenital Heart

Eva Goossens, Steffen Fieuws, Kristien Van Deyk, Koen Luyckx, Marc Gewillig, Werner Budts, Philip Moons
The Journal of pediatrics - 2015

Susanne Hwiid Klausen, Jørn Wetterslev, Lars Søndergaard, Lars L Andersen, Ulla Ramer Mikkelsen, Kasper Dideriksen, Vibeke Zoffmann, Philip Moons
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - 2015

Prevalence and antithrombotic management of atrial fibrillation in hospitalised

patients.

Dana Berti, Eline Moors, Philip Moons, Hein Heidbuchel
Heart (British Cardiac Society) - 2015

Sense of Coherence in Young People With Congenital Heart

Silke Apers, Koen Luyckx, Eva Goossens, Jessica Rassart, Werner Budts, Philip Moons
Journal of developmental and behavioral pediatrics : JDBP - 2015

Uncertainties in insurances for adults with congenital heart

M A Sluman, S Apers, B J Bouma, J P van Melle, C H Peels, M C Post, W M Waskowsky, Philip Moons, B J M Mulder
International journal of cardiology - 2015

Parenting styles and perceived health in adolescents with congenital heart

Philip Moons
18th Annual update on pediatric and congenital cardiovascular disease. Scottsdale, Arizona, USA - 2015

Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): Rationale, design, and

methods.

Silke Apers, Adrienne H Kovacs, Koen Luyckx, Luis Alday, Malin Berghammer, Werner Budts, Edward Callus, Maryanne Caruana, Shanthi Chidambarathanu, Stephen C Cook, Mikael Dellborg, Junko Enomoto, Katrine Eriksen, Susan M Fernandes, Jamie L Jackson, Bengt Johansson, Paul Khairy, Shelby Kutty, Samuel Menahem, Gwen Rempel, Maayke A Sluman, Alexandra Soufi, Corina Thomet, Gruschen Veldtman, Jou-Kou Wang, Kamila White, Philip Moons
International journal of cardiology - 2015

How do we improve patient

knowledge

Philip Moons, Eva Goossens, Ewa-Lena Bratt
Annual Program on Congenital Heart Disease in the Adult: An International Symposium, Cincinnati summit June 10-13, 2014 - 2014

Validation of a new multidimensional scale to evaluate itch in children aged 6-14 years: Leuven Itch Scale children's version (LIS-C) and parents' version

(LIS-P)

M. Morren, J. Basstanie, S. Peeters, Philip Moons, N. Van Broeck, P. Byttebier
British Journal of Dermatology. 8th Georg Rajka Symposium on Atopic Dermatitis (ISAD). May 21-23, 2014, Nottingham, UK - 2014

Public knowledge about atrial fibrillation and impact of an information

campaign

D. Berti, H. Descamps, Philip Moons, H. Heidbuchel
Acta Cardiologica. The 8th Belgian Heart Rhythm Meeting. 2-3 October, 2014. Brussels Belgium - 2014

The activity profile of home nurses: a systematic

Kristel De Vliegher, Anja Declercq, Bert Aertgeerts, Philip Moons
Home Health Care Management & Practice - 2014

A closer look at the developmental interplay between parenting and perceived health in adolescents with congenital heart